<p><span style="font-size: 13pt; line-height: 115%; font-family: 'Arial Narrow','sans-serif'; mso-fareast-font-family: Calibri; mso-fareast-theme-font: minor-latin; mso-bidi-font-family: 'Times New Roman'; mso-bidi-theme-font: minor-bidi; mso-ansi-language: EN-GB; mso-fareast-language: EN-US; mso-bidi-language: AR-SA;"> <p class="MsoNormal" style="margin: 0cm 0cm 10pt; text-align: justify;">&nbsp;</p> <p class="MsoNormal" style="margin: 0cm 0cm 10pt;"><span style="font-size: 12pt; color: black; line-height: 115%; font-family: &quot;Arial Narrow&quot;,&quot;sans-serif&quot;; mso-bidi-font-family: 'Times New Roman';">As you will no doubt now be aware, we lost our brave Teddy&nbsp;on Thursday 9^th June 2011. He was exactly 11 months old. He died from Spinal Muscular Atrophy (Type 1). </span><span style="font-size: 12pt; line-height: 115%; font-family: &quot;Arial Narrow&quot;,&quot;sans-serif&quot;;">The condition affected the motor neurons in his spine and therefore his ability to move. He inherited the condition from a combination of both our genes. He got increasingly weaker as more muscles were affected. Ultimately his ability to swallow and breathe became impaired. His cognitive function was not at all affected which meant that mentally, he was a normal, exceedingly bright and happy baby boy (as you can tell from the photo). </span></p> <p class="MsoNormal" style="margin: 0cm 0cm 10pt;"><span style="font-size: 12pt; color: black; line-height: 115%; font-family: &quot;Arial Narrow&quot;,&quot;sans-serif&quot;;">Throughout the worst of Teddy&rsquo;s illness we were assisted and given invaluable support and care by the Colchester Children&rsquo;s Community Nursing team. Without them it would have been impossible to care for Teddy at home in the manner that we were able to. </span><span style="font-size: 12pt; color: black; line-height: 115%; font-family: &quot;Arial&quot;,&quot;sans-serif&quot;; mso-fareast-font-family: 'Times New Roman'; mso-fareast-language: EN-GB;"></span></p> <p class="MsoNormal" style="margin: 0cm 0cm 10pt; line-height: normal; mso-margin-top-alt: auto; mso-margin-bottom-alt: auto;"><span style="font-size: 12pt; color: black; font-family: &quot;Arial Narrow&quot;,&quot;sans-serif&quot;;">We realise that people may wish to send flowers for Teddy, but we believe that the money would be better spent in helping the Children&rsquo;s Nursing team to continue to provide support, care and comfort to families in similar situations to ours.</span></p> </span></p>