"Orla's Own Steps' needs raise £30,000 by Summer 2016 for pre-operation therapy and an actual operation.  The remaining £50,000 is for post-operation therapy and equipment.

Orla's Story

Orla, is like all 3 years olds - fun, cheeky, naughty, happy, mischievous and extremely well loved!  There is only one difference between her and all her friends, Orla cannot stand, balance or walk unaided.  Orla gets herself around by crawling indoors or using her best buddy Spot (a walking frame).  We want to change that and help Orla to take her Own Steps!

The operation Orla will need is a procedure called Selective Dorsal Rhizotomy (SDR). More information on this operation can be found  at this link. http://www.stlouischildrens.org/our-services/center-cerebral-palsy-spasticity/about-selective-dorsal-rhizotomy-sdr

At this moment in time the NHS will not fund the operation for Orla, however they are carrying out trials on children who fit into a certain criteria.  Orla is not one of these children but she has been assessed by Great Ormond Street Hospital and we have been told that  she would be a good candidate for the operation.

Orla is not quite ready for this Operation. The operation is a gruelling 5-6 hours and more importantly Orla will require 3-4 sessions of private physiotherapy a week for up to 3 years.  We have a huge amount of work to do in strengthening her physically and mentally so that she is strong enough.

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