Thanks for taking the time to visit our JustGiving page.

"Please help us raise money for little girls with Rett Syndrome, like our friend Frankie" from Sophie.

"I hope we find a cure for people like Frankie" from Charlotte.

"Frankie is a very special friend of ours - she is 6 years old, the same age as Sophie. She was diagnosed with Rett Syndrome shortly after her first birthday. On Sunday 11th September, we will walk 5km in the Womens Hyde Park Race. We want to run the race but Mummy says -we'll see!!! We are going to do our best, we hope we can help to find a cure by raising money today" from Charlotte and Sophie.

Rett Syndrome is the most physically disabling of the autism spectrum disorders. Primarily affecting little girls, Rett often strikes just after they have learned to walk and say a few words, and begins to drag their development backward. This debilitating syndrome includes symptoms seen in many other severe neurological and neuropsychiatric disorders. Currently there are no effective treatments for Rett Syndrome. Most girls survive into adulthood and require total, 24-hour-a-day care. Adrian Bird PhD has now demonstrated the reversal of Rett Syndrome in mature mouse models with late stage disease. Only days away from death, these animals recovered normal function and became indistinguishable from healthy mice in a matter of weeks.

This singular achievement has catapulted Rett into new realms of possibility and positions Rett Syndrome to be the first curable childhood neurological disorder.

The future of children and adults with Rett Syndrome depends on research. Without it, they will be completely dependent and locked in for the rest of their lives. The Rett Syndrome Research Trust is supported by Rett Syndrome families and friends who agree with the urgency of our cause and wish to see the science move forward full speed ahead - please take a look at their website -http://www.reverserett.org.uk/

This charity is very close to our hearts and if you are able to support us, we would be very grateful. Thank you from all the Henry girls.

Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving – they’ll never sell them on or send unwanted emails. Once you donate, they’ll send your money directly to the charity and make sure Gift Aid is reclaimed on every eligible donation by a UK taxpayer. So it’s the most efficient way to donate - I raise more, whilst saving time and cutting costs for the charity.

So please dig deep and donate now.