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Hi folks,
Recently I became involved with Rett UK as my little 3 year old niece Lucie has just been diagnosed with Rett Syndrome “stage 3” of this condition and for once in my life I felt pretty useless. This prompted me to find out more about this terrible disease and decided that I could do something to help not just my niece but other children as well. I am desperate and determined to get this organisation some money and I’ve committed to run 10k everyday for a month which I feel will help the cause for this charity.
What is Rett syndrome-Well it is a neurodevelopmental disorder of the grey matter of the brain that affects girls almost exclusively. The clinical features include small hands and feet and a deceleration of the rate of head growth (including microcephaly in some). Repetitive hand movements, such as wringing and/or repeatedly putting hands into the mouth, are also noted. Girls with Rett syndrome are prone to gastrointestinal disorders and up to 80% have seizures. They typically have no verbal skills, and about 50% of females are not ambulatory. Scoliosis, growth failure, and constipation are very common and can be problematic.
Therefore I am looking for people to sponsor me to run these daunting 10k run every day in February; I have already started training just now to prepare myself for this tough challenge.
I would like to raise a serious amount of cash for this charity as its now become very close to my heart; I have convinced my gym physiotherapist of the cause and she is going to do all my physio work for free and also have the gym involved watching my challenge throughout the month of February.
Please, Please help me?
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