in work till 6pm, leg it to the airport,fly to manchester get back to Hudds, sleep, get up ...DO THE ONESIE WALK! click the link to sponsor please xx

Only one week to go!

Thank you Tanya Power for your generous donation on Sunday. If any of you have a couple of minutes to spare please look at the sponsor page. I am taking part in a 17mile walk over the Yorkshire Moors in memory of a beautiful little girl called Rowan who died from the UK and Ireland's biggest killer of babies under 18 months, the genetic disease - SMA. Every single penny we raise helps towards understanding this disorder and helping those who suffer live that little bit longer.

thank you to my lovely Didi for her donation, you're a star. If you lovely people of Facebook have a minute to look at my fundraising page, it 's very dear to my heart and the walk is in only two weeks time!

my dearest Lou Lou has kindly donated towards our Onesie Walk challenge _ thank you so much. our first donation, yippee!

ladies and gents, it's been a year already!! on Sunday 25th May myself Dearbhla, Brian, Christian and Martin will be partaking in the Onesie Walk, a 27km/17m walk over the Yorkshire Moors. I would be super delighted with life itself if my dear Facebook friends would dig deep and sponsor us a few Euro and show your support. This is our second time joining my UK friends in this brilliant and amazing challenge. have a look at some the pictures from last year, it was truely breathtaking and really awarding, plus we raised loads of money! thanks in advance of your generosity! Xx

Hello!

On Sunday May 25th 2014 I shall be taking part in the 2nd annual 'Onesie Walk' which is a 17 mile (or 27 kilometer for my European friends!) walk over the Yorkshire Moors aimed at raising money and awareness for The SMA Trust. Last year was a great success, £8k was raised and it was an amazing experience for all that took part. 

SMA (Spinal Muscular Atrophy) is a genetic disorder that is inherited and affects nerves responsible for muscle function. Although classified as rare, SMA is the leading genetic killer of infants and toddlers, with approximately 95% of the most severely diagnosed cases resulting in death by the age of 18 months. 

As many of my friends know, two dear dear friends of mine, Sarah and Matt, found out they were carriers of this gene once their first daughter, Rowan Macie Poole was  born and then 6 months later diagnosed with SMA. Rowan didn't progress like other babies, she could'nt hold her head up or grip her toys, she eventually had to be fed through a nasal gastric feeding tube. This little brave girl passed away when she was 18 months old.

Since her passing many people have been motivated by her strength to do something to raise awareness and money in her memory.

I am, along with my boyfriend Martin and three fabulous friends Dearbhla, Brian and Christian, taking part in the Onesie Walk this year to celebrate Rowan and her time with us. 

Thank you very much for reading my sponsorship page and more importantly for donating. Every single penny/cent that is raised goes to The SMA Trust, an organisation that is growing day by day with the long term hope of a cure. Their present challenges are to understand the disorder, to study the genes and work out how we can prolong and improve life for those who have SMA.

Read more about Rowans story - http://www.teamrowan.moonfruit.com

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