My story

Hello,

I’m Zavier Shanks, though everyone seems to call me “Mr Sausage” for some reason.

I was born in Worcester on 1st October 2010. My mummy is Suzi and my daddy is Tom. I have 2 big sisters and a big brother. He’s my big mate and he looks after me just like big brothers do.
I get lots and lots of cuddles and kisses from everyone (between you and me I think I probably get too many – everyone makes such a fuss and they could do with just giving me a break every now and then)!
I enjoy listening to the general chaos around the house and I like watching football matches too. I spend the rest of my time trying to avoid hospitals and I try to squeeze as much fun as I can out of each day. That said, I enjoy relaxing activities like sleeping, feeding and bathing too. Because I have something called an NG tube I can actually have my dinner and sleep at the same time. I bet you wish you could do that don’t you?

Mine is a fairly uncomplicated life, and I am no poorer because of that let me assure you. I have something (and brace yourself, as this is a bit of a mouthful) called a severe congenital sensory and motor peripheral neuropathy. It causes me no real pain though, and like I say, I’m pretty relaxed and matter of fact about things generally.

12 friends of mine are planning to climb Britain’s 3 highest peaks in 3 consecutive days in aid of the Orchard Nurses. They are a small team of nurses who ensure that I am able to be looked after at home rather than in hospital or in a hospice. They are an invaluable support to me and my family, and can be here within minutes of us contacting them every day.

They all arrive with a smile on their faces and nothing is too much trouble, from replacing feeding tubes, ordering medicines, equipment, contacting the GP, organizing appointments with other professionals and generally ensuring that we as a family are looked after in every way possible. Rosie, our Family Support Worker has built a wonderful relationship with Xara, Jasper and Scarlett and is helping them to deal with the enormity of the situation that we find ourselves in and helps them deal with their feelings day to day and looking to the future. Her role covers the whole county and other families but she always makes time to visit us and to ensure that we are all ok, even the Henry the dog!

My friends want to do this in order to raise money for these wonderful people ensuring that I continue to get the best care possible at home for my lifetime.

I would be so grateful if you would consider sponsoring them in their endeavours and raising money for this great cause which is so very personal to us.

Good luck.

Hope to see you soon.

Lots of love,

Zavier

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My Teams

My company

My charity

WORCESTERSHIRE HEALTH & CARE NHS TRUST

WORCESTERSHIRE HEALTH & CARE NHS TRUST

Charity Registration No. 1060335

ANY CHARITABLE PURPOSE WITHIN THE NHS

Donations 211

just added to the fund - well done everybody for your efforts

Donation by christine armstrong on 12/09/11

£30.00

+ £7.50 Gift Aid

well done :)

Donation by kim wheeler on 12/09/11

£5.00

Donation by Anonymous on 12/09/11

£5.00

+ £1.25 Gift Aid

Well done All. x

Donation by Nic peters on 12/09/11

£30.00

+ £7.50 Gift Aid

Top work all.

Donation by Phil Toms on 11/09/11

£20.00

+ £5.00 Gift Aid

Well done. Great achievement.

Donation by Nigel Shoosmith & Family on 11/09/11

£10.00

+ £2.50 Gift Aid

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Nearly there, only Snowdon to go now. Hope the aches & pains don't last too long! Well done everyone.

Donation by Julie Corbett, Jim, Jess and Jack on 10/09/11

£15.00

+ £3.75 Gift Aid

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Our gardens need you Andy, hope your'e not too worn out next week! Well done.

Donation by Mr Tanner and Mr Collins on 10/09/11

£21.00

+ £5.25 Gift Aid

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Well done Andy Hawker, and everyone else doing the challenge.

Donation by Mom and Sallie Hawker on 10/09/11

£10.00

+ £2.50 Gift Aid

Well done Dave & the rest of you guys! xxx Jo & David

Donation by Joanne Pullen on 10/09/11

£10.00

+ £2.50 Gift Aid

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Ben Nevis completed! Can't wait to hear all about it, Miss you Dad! Eats sweets keep the sugar up, don't bounce up the mountains! :) :D

Donation by Sophie Hawker on 10/09/11

£5.00

Well done on such a great achievement guys, Ben Nevis already conquered! Miss you Andy (the gardener) but look forward to hearing all about it! xxx

Donation by Tracey Manton on 10/09/11

£20.00

+ £5.00 Gift Aid

Nice work guys :-)

Donation by Jo Lally x on 09/09/11

£20.00

+ £5.00 Gift Aid

Tucker, go safely and keep your hand on it. The Boss is watching over you. All love x

Donation by Anne McAlister-Dilks on 09/09/11

£20.00

+ £5.00 Gift Aid

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Donation by lisa bradshaw on 09/09/11

£10.00

+ £2.50 Gift Aid

Well done guys!

Donation by Adams Family on 09/09/11

£10.00

+ £2.50 Gift Aid

Well done Tom and 3 Peaks Team!

Donation by Cathy and all at Little Hoots on 09/09/11

£20.00

+ £5.00 Gift Aid

Good luck cockney scouser - a great cause and beer waiting when you return. Tony & Sue

Donation by Tony Hunt on 09/09/11

£25.00

+ £6.25 Gift Aid

Well done!

Donation by Dotti Family on 09/09/11

£20.00

Good luck Beans and friends. Have a gay time!

Donation by Sarah Barnard on 09/09/11

£5.00

+ £1.25 Gift Aid

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Good Luck to you all, Lots of love Cass and the girls x

Donation by Cassandra Bedding on 09/09/11

£20.00

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Well done guys! Hope it doesn't hurt too much :)

Donation by Sarah Bowen on 08/09/11

£15.00

+ £3.75 Gift Aid

Hi Andrew, trust you are all in PEAK condition for the start tomorrow morning. A terrific cause. Best wishes and good luck to all the guys.

Donation by Dad & Julie on 08/09/11

£40.00

+ £10.00 Gift Aid

Donation by Michael Williams on 08/09/11

£5.00

+ £1.25 Gift Aid

Wishing you all the best of luck. xxx

Donation by Jodie Rawes on 08/09/11

Donation summary

  • * Online donations£5,279.00
  • Offline donations£0.00
  • Text donations£0.00
  • Total raised£5,279.00
  • Gift Aid£929.75

* Charities pay a small fee for our service. Find out how much it is and what we do for it.