Thanks for taking the time to visit my JustGiving page.
Although we have completed our run, we are still happy we are continuing to smash our target as every little bit extra goes to helping other families as well as your're supporting Kieran. Please continue to sponsor us, we really appreciate it, and thank you for digging deep at this time of year :) I'm so happy this will help others, we are so grateful! We are so so so grateful we can't explain it, THANK YOU TO ALL WHO DONATED AS SOME DIDN'T LEAVE YOU EMAIL ADDRESSES!
UPDATE ON 13TH DEC - WE COMPLETED OUR RUN/WALK ON SAT 12TH DEC, WE HAD A GOOD DAY THE SUN WAS SHINING FOR US, AND I MUST SAY IT TOOK HOURS, SEVERAL HOURS, KIERAN SLEPT IN HIS PRAM ALL THE WAY TO SHOREHAM WE WOKE HIM AT JUST PAST MIDDAY FOR LUNCH THEN WE MADE OUR WAY BACK FOR THE FINAL 5 MILES AND AGAIN HE SLEPT, KIERAN HAD THE BEST SEAT ALL NICE AND COSY IN HIS PRAM WITH DADDY PUSHING HIM HOW RELAXING ;-)
I BELIEVE WE ACTUALLY DID ABOUT 13 MILES AS WE COMPLETELY FORGOT WE HAD TO GET FROM HOME TO OUR STARTING POINT WHICH WAS THE PIER IN WORTHING HAHA
IT WAS COMPLETELY WORTH IT AS EVERYONE HAS BEEN SO GENEROUS, THANK YOU JUST DOESN'T SEEM ENOUGH, BUT TO ALL OF YOU THAT DONATED WE WILL BE ETERNALLY GRATEFUL, WE CAN GET KIERAN HIS TREATMENT AND HELP OTHER BABIES WITH THE SAME PROBLEM
ITS MEANT SO MUCH TO HAVE YOUR SUPPORT AND WE REALLY ARE TRUELY GRATEFUL FOR ALL YOUR KINDNESS AND HELP.
WE GOT HOME AND MY FEET WERE BURNING AT THE SOLES, WE ALL HAVE A BAD KNEE EACH (WHAT A TEAM) I HAVE BEEN HOBBLING AROUND THE HOUSE ALL DAY, BUT IT WAS SO WORTH IT!
THANK YOU AGAIN, WE LOVE YOU ALL. WE'LL LOAD PICTURES SOON
WOW WHAT ELSE CAN I SAY, WE'LL NEVER FORGET THIS.
ZOE, RICARDO, ANA AND KIERAN XXXXX
Any Donations will help Kieran directly along with other families who need help :)
Welcome to our page - THE DREAM TEAM!
Oh my god we are all sooo unfit, however we all want to raise money for this charity including Kieran (in his pram) so we will be doing a jog/walk from our home in Worthing to Shoreham by Sea and back again which in total is 10 miles......
This week, Kieran 9 months old was confirmed as having Severe Brachycephaly along with Deformational Plagiocephaly by The London Orthotics Clinic, what is this I hear you all say?? well...
Deformational Plagiocephaly, also known as “Flathead Syndrome” is a condition characterised by a flattening on one side of the back of the head. It may also involve bulging of the forehead, fullness of the cheek and ear misalignment on the same side as the flattening.
Under the broad term “Flathead Syndrome” there are two other head shapes: Brachycephaly and Dolichocephaly also sometimes known as Scaphocephaly. In Brachycephaly the head is wide in relation to its length and appears flat at the back. The head may have a high “peaked” appearance, and sometimes both sides of the forehead can be bulged. Dolichocephaly is when the head is narrow in relation to length (front to back).
The treatment that Kieran needs to correct his head shape is to wear a headband for around 3-6 months
The cost per treatment is £2,000 and the NHS WON'T cover the cost, their view is it 'should' get better with time, and its cosmetic, ok I am sure we could all think of a few treatments the NHS pay for that they really shouldn't!!! Look at the recent marriage counselling costs that were covered?????
Kierans headshape has caused his forehead to protrude out slightly on one side, and his ears are very slightly missaligned! As his head is continuing to grow in this shape this will probably get worse and be more noticeable when he's older, this could cause a few things, bullying in school which can also lead to other medical problems, he would struggle to buy a bicycle helmet or even motorbike helmet when he is older, meaning he would not be as safe as they wouldn't fit his head.. childrens jaws can end up missaligned with this problem.
Please help us raise money for Kieran and for this charity, Kieran will begin his treatment just after Christmas, we need to raise as much funds as we can for Kieran and other children suffering from this problem, and lack of information from the NHS about this.
I can't believe the view they have of just leaving it to see how it is when he is older, by this time its too late to do anything about it.
As with all parents we want our children to have the best in life if we can, if I can avoid unneccessary, further deformation of his head shape, we will!
I could go on for ages, please help us :)
We appreciate anything you can help and so will other families having to go through this.
Lots and lots of love, Zoe, Ric, Kieran and Ana xxxx
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