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The Neuroblastoma Alliance - Adam Bird Appeal
Event: The Neuroblastoma Alliance Team's fundraising
$554,941.78 raised
1617 donations
My Target:
$554,941.78 raised so far
How to make a donation
Donate online at - www.justgiving.com/AdamBirdAppeal
By mobile internet Scan this code on your smartphone to go straight to The Neuroblastoma Alliance UK's page.
By text message to donate £10 Text ADAM84 £10
to 70070
My story
Our son Adam is suffering from a rare and aggressive children's cancer called Neuroblastoma. We desperately need your help to raise money to allow us to take Adam to America for treatment that could save his life. Having a child in this situation is every parent's worst nightmare. Since he was diagnosed last year our world has been turned completely upside down. Adam is frequently hospitalised and our life is consumed by medication and treatment and stress. We cling to the hope that Adam will stay strong long enough to get the treatments he needs and that they will make our family whole again.
http://www.adamsappeal.org
In July 2009 our son Adam was diagnosed with High-Risk Neuroblastoma (Stage Four MYCN amplified), a rare and aggressive cancer that affects about 100 children in the UK each year. In addition to the primary tumour in his abdomen, the disease had spread to his bone marrow, his lymphatic system, and other distant areas of his body. Like the vast majority of Neuroblastoma patients Adam had an advanced form of the disease before it was discovered. Early symptoms are vague and unremarkable - reduced appetite and increased tiredness.
Since his diagnosis Adam has been cared for by one of the country's leading paediatric cancer care units. He has so far had surgery to remove a gland in his neck, had an intravenous line fitted directly into his heart for drug administration, undergone 8 months of intensive chemotherapy, endured dozens of invasive testing procedures and needed numerous blood and platelet transfusions. He also has to take a daily cocktail of other drugs to counter the side-effects of the chemotherapy and to try and keep his body functioning normally.
The treatment of High-Risk Neuroblastoma is harsh and unrelenting but it needs to be to combat this aggressive cancer. Children who achieve clean bone marrow and mIBG tests results after the initial rounds of chemotherapy must undergo a stem cell harvest, surgery to remove any solid tumours, high-dose chemotherapy to wipe out their bone marrow and stem cell rescue to transplant the previously harvested stem cells back into the body to allow new bone marrow to be grown. Finally they will have radiotherapy and then 6 months of oral chemotherapy and antibody therapy to mop up any undetectable residual disease. Even after all this the chance of relapse is high.
In Adam’s case the cancer has not responded well enough to treatment. His bone marrow remains infected and scans still show disease spread throughout his body. Without being clear of detectable disease Adam cannot move forward to the other stages of treatment. He is to undergo another two additional 7-day cycles of a harsh chemotherapy regimen to try and get him to the next stage. Adam is currently undergoing a 6-month course of immunotherapy in Greifswald, Germany.
Despite all this treatment mIBG scans, the most reliable test for neuroblastoma, show widespread bone and bone marrow disease.
There are no further options for Adam in the UK. After treatment in Germany ends we do not know precisely what the future holds, however, our most likely destination will be America - to enroll Adam on early phase clinical trials in the hope of keeping his disease at bay.
It is for these treatments, treatments that are not available in the UK, that we urgently need to raise funds to enable us to take Adam to America. We are not 100% sure at this time what these will be, or when. It is an incredibly costly endeavour and we need to raise hundreds of thousands of pounds. Unless we raise the funds now our options for Adam's treatment will be limited precisely when we need to get him the best available treatment regardless of cost or geography.
Please help Adam in any way you can, however big or small. Together you could make the ultimate difference to this lovely little boy's future.
My gallery 4
My charity
Neuroblastoma Children's Cancer Alliance
Charity Registration No. 1135601
We help children with neuroblastoma, a very aggressive childhood cancer, if they can't join UK trials or need a clinical treatment that is only available abroad. We help with treatment costs, support families and fund research.
Donations 1617
Donation by Joanne Moore on 20/05/13
£5.00
+ £1.25 Gift Aid
Hi Adam & family. Keep fighting and stay strong. Thinking of you all and sending you my prayers. x
Donation by Jodie :) on 18/05/13
£5.00
+ £1.25 Gift Aid
Donation by Anonymous on 14/05/13
£10.00
Thinking of you.
Donation by Catherine O'Sullivan on 07/05/13
£10.00
+ £2.50 Gift Aid
Donation by Greg Freeman on 07/05/13
£5.00
+ £1.25 Gift Aid
Donation by Anonymous on 03/05/13
£3.00
Thinking of you all on the occasion of your Grandparents special anniversary and hoping Adam will be well enough to enjoy it.
Donation by Alison Kelin on 26/04/13
£20.00
+ £5.00 Gift Aid
Donation by Nicole Scobie on 28/03/13
£100.00
Donation by Michelle keown on 27/03/13
Thinking of you all and praying for Adam's recovery.
Donation by Patricia Lee on 06/03/13
£10.00
+ £2.50 Gift Aid
Bless you, Adam.
Donation by Sue Webb on 13/02/13
£20.00
+ £5.00 Gift Aid
Keep well, Keep safe, Get Better!
Donation by Ev and Geoff Mellor on 25/01/13
£50.00
Wishing you a happy and healthier New Year.
Donation by Eric Miller on 31/12/12
£50.00
+ £12.50 Gift Aid
Donation by Catherine O'Sullivan on 28/12/12
£10.00
+ £2.50 Gift Aid
Donation by Farina Litt on 21/12/12
£10.00
+ £2.50 Gift Aid
Merry Christmas and a Happy New Year to everyone at FCSL and FCL Organisation. Love Sadie xxxx
Donation by Sadie White on 20/12/12
£50.00
+ £12.50 Gift Aid
Donation by Anonymous on 15/12/12
£10.00
+ £2.50 Gift Aid
Donation by The Parkinsons on 06/12/12
£20.00
+ £5.00 Gift Aid
Donation by Anonymous on 13/11/12
£10.00
+ £2.50 Gift Aid
Much love to you x
Donation by Natalie Griffiths on 11/11/12
£5.00
Donation by Anonymous on 10/11/12
£3.00
Such a beautiful little boy. Sorry it couldnt be more. x
Donation by Rachel Edwards on 30/10/12
£10.00
+ £2.50 Gift Aid
Remembering Adam and all his family in my prayers. God bless you all and give you strength and courage x
Donation by Anonymous on 30/10/12
£20.00
+ £5.00 Gift Aid
Donation by Anonymous on 26/10/12
£50.00
+ £12.50 Gift Aid
Happy Birthday for Friday 9th (it's my Birthday too x)
Donation by Eric Miller on 25/10/12
£10.00
+ £2.50 Gift Aid
Donation summary
- * Online donations$122,405.58
- Offline donations$432,375.50
- Text donations$160.70
- Total raised$554,941.78
- Gift Aid$27,214.04
* Charities pay a small fee for our service. Find out how much it is and what we do for it.
