Story
Thanks for taking the time to visit my JustGiving page.
Myself & Elaine are both competing in the Barcelona marathon on 7th March 2010 to raise money & awareness of Prader-willi Syndrome . We have a 20 month old daughter Iona who has been diagnosed with Prader-Willi. PWS is a very complex condition affecting approx 90 persons in scotland .Sufferers will have low muscle tone , incomplete sexual development & obsessive,behavioral difficulties with lack of control of emotions . Most noteablly they will have an insatiable appetite for all of their life & will battle with obesity & all other health problems associated with obesity . There is no cure for this & will be with sufferes for life .
I have been competing in numerous events for approx 20 years & this is the first major fundraising i have done . This really means alot to myself & Elaine so please give generously . All monies raised will go to Pws UK who provide support for famillies & suffers , this is a small charity but provides a great service .
For more information in rlation to this syndrome please check www.pwsa.co.uk
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So please dig deep and donate now.