<h1 class="title2"><strong><span id="dnn_ctr420_dnnTITLE_lblTitle" class="Head"><br /></span></strong></h1> <p><strong><span id="dnn_ctr420_dnnTITLE_lblTitle" class="Head" style="color: #000000;">This </span><span id="dnn_ctr420_dnnTITLE_lblTitle" class="Head">year on the 18th September I have signed up to run the </span><span id="dnn_ctr420_dnnTITLE_lblTitle" class="Head">Great North Run </span><span id="dnn_ctr420_dnnTITLE_lblTitle" class="Head">in Newcastle, for my Niece Ellie, who has a very rare condition called </span>Congenital Myasthenic Syndrome (CHAT).</strong></p> <p><strong><br /></strong></p> <p><strong>Congenital Myasthenic Syndrome &ndash; a myasthenia caused by a gene fault that is characterised by apnoea and respiratory arrest. </strong></p> <p><strong><br /></strong></p> <p><span style="color: #ff0000;"><strong><span id="dnn_ctr420_dnnTITLE_lblTitle" class="Head">Please find it in your heart to give a little amount for such a good cause.</span></strong></span></p> <p><strong><span class="Head"><br /></span></strong></p> <p><span style="color: #0000ff;"><strong>Ellie had hundreds of respiratory arrests and four cardiac arrests before she was 15 months old. She was ventilator-dependent for many months and still has a tracheotomy&nbsp; in place today, Her parents were told she was unlikely to &nbsp; survive, however, </strong><em><strong>today she is in mainstream school with support. </strong></em></span></p> <div style="width: 600px; vertical-align: top; margin-top: 10px; margin-bottom: 10px;"><img style="float: left; padding-right: 10px;" src="http://myasthenickids.org/Portals/0/Ellie1.jpg" alt="Ellie" width="300" height="224" /> <p style="margin: 0pt;">&nbsp;</p> </div> <div style="clear: both;"><img style="float: left; padding-right: 10px;" src="http://myasthenickids.org/Portals/0/Ellie2.jpg" alt="Ellie" width="300" height="281" /> <img src="http://myasthenickids.org/Portals/0/Ellie3.jpg" alt="Ellie" width="300" height="281" /></div> <p>Thanks for taking the time to visit my JustGiving page.</p> <p>Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving &ndash; they&rsquo;ll never sell them on or send unwanted emails. Once you donate, they&rsquo;ll send your money directly to the charity and make sure Gift Aid is reclaimed on every eligible donation by a UK taxpayer. So it&rsquo;s the most efficient way to donate - I raise more, whilst saving time and cutting costs for the charity.</p> <p>So please dig deep and donate now.</p> <p style="text-align: center;">&nbsp;</p> <p>&nbsp;</p>