Angelina's Page

Angelina Mills is raising money for Sturge Weber UK
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Sponsored Skate · 24 August 2015

Sturge Weber UK inspires to promote research and share knowledge to empower individuals diagnosed with Sturge Weber Syndrome and their families and carers. Giving strength to create a supportive, inclusive and caring community whilst raising both public and professional awareness.

Story

Hi - My name is Angelina Faith Mills and I am 6 years old. For those of you who dont know me I was born with a very brain disorder called Sturge Weber Syndrome, for the 1st year of my life I suffered with daily uncontollable seizures and episodes that left half of my body weak (typical appearence of a stroke) I couldnt do many of the things other children my age could do and all I wanted to do was sleep due to the seizures taking all my energy! On June 24th 2010 at Great Ormond Street Children's Hospital I underwent a very serious brain operation known as a Hemispherectomy - this involved dissconecting the right side of my brain and removing some parts to alleviate the seizures that medication wouldnt, I spent 7 hours in surgery followed by a further 7 days in hospital.

Throughout the last 5 years I have been seizure controlled and no longer require daily anti-epileptic medication like I did before my operation, I still and always will have to work that extra bit harder than anybody else, I cannot use my left hand for any motor skills what so ever and have very limited mobility in my left arm and left leg, I have lost all my vision in the left side of both my eyes and continue to attend many hospital and thearpy appointments but.... I will not let my disabilites get in the way of what I want to do.

On 24th August 2015 I shall be taking part in a 3 hour sponsored skate for Sturge Weber UK - a registered charity who have supported me and my family throughout my journey so please sponsor me what ever you can or come and join me www.justgiving.com/teams/skate4angelina

Thanks for taking the time to visit my JustGiving page with love from Angelina x

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