Team Big Juicy Platelet

Annie Diplexcito is raising money for ITP Support Association
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Edinburgh Kiltwalk 2023 · 17 September 2023 ·

The ITP Support Association is the sole UK registered charity supporting and representing the interests of patients, and the families of patients, with Immune Thrombocytopenia (formerly known as Idiopathic Thrombocytopenic Purpura), and funding research into the causes and best management of ITP. The ITP Support Association was formed in 1995 to provide information and a support network for adults, and parents of children, with ITP. Immune Thrombocytopenia is a frightening rare bleeding disorder in which the body’s immune system destroys platelets in the blood. Unlike autoimmune diseases such as rheumatoid arthritis and MS it is not progressive as the risk of bleeding exists from the day the disease develops. It can arise in anyone at any age, and affects three to four thousand adults and children in the UK. Its symptoms vary from one sufferer to another but include nose bleeds, mouth blisters, heavy periods, large multi colour bruises, petechiae, fatigue and, on rare occasions, internal bleeding. Treatments, which all have their dangers and drawbacks, are not always effective in raising the platelet count, and only rarely cure the disease.

Story

Thanks for taking the time to visit my JustGiving page.

I was first diagnosed with ITP aged 3 (25 years ago!!) however by age 17, things had settled down. Sadly in February my count plummeted out of the blue, resulting in 2 hospital admissions, amongst other treatments, including Eltrombopag (which resulted in me having to cease breastfeeding my 9 month old baby). After being on Romiplostim for the past 5 weeks, I am finally seeing results and feeling slightly more like myself. 

My family and I are really looking forward to walking the kiltwalk, raising much needed funds for a charity very close to our hearts.

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Donation summary

Total
£950.00
+ £188.25 Gift Aid
Online
£950.00
Offline
£0.00

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