Belinda Kembery's Fundraising Page
Page creator: Belinda Kembery
Event: BDFA Sponsored Walk Challenge 2008
Event Date: 10th May 2008
Team Members: Eddie and David
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About our charity : Batten Disease Family Association Batten Disease Family Association
Batten Disease is a group of rare, progressive neurodegenerative, genetic metabolic diseases that occur in children and adults worldwide. The BDFA's Vision is to bring light to Batten Disease by being the central point of excellence in the UK for supporting affected families and to facilitate research into the disease.
Charity Registration No 1084908
Fundraising target:  £1,200.00
Donations so far:  £ 3,540.00
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Our personal message:

Thank you for visiting our fundraising page.

It is a parent's worst nightmare to have a child diagnosed as having Battens disease - and it will have a lifelong impact on any siblings too.  Battens disease causes degeneration of the brain and nervous system, which means that the child will suffer progressive and profound disabilities and die young.  There is no treatment and no cure.

The Batten Disease Family Association provides emotional and practical support for families with an affected child/ren, educates the professionals (doctors, nurses, therapists) who may not have come across the condition before and funds research projects into therapies and potential cures.


Donating through this site is simple, fast and totally secure. It is also the most efficient way to sponsor us: Batten Disease Family Association will receive your money faster and, if you are a UK taxpayer, an extra 28% in tax will be added to your gift at no cost to you.

So please sponsor us now!

Many thanks for your support.

Belinda and family

Display Name Date Amount Tax Bonus  Comment
Harry & Ella Day 27/06/2008 £20.00 £5.64 Well done Eddie - sorry we're late but Harry is quite keen to walk with you next year! 
VIVIEN TUCKER 02/06/2008 £50.00 £14.10 Well done Eddie!  
Luca and Oscar 16/05/2008 £50.00 n/a That's a long walk - great work Eddie! 
Anna and family 13/05/2008 £100.00 n/a Well done Eddie love from Anna and all the Bentons 
The Atkinsons 13/05/2008 £20.00 £5.64 Congratulations to our special godson! 
maggie Davies 07/05/2008 £25.00 £7.05 Good luck Eddie. From all of the Davies 
Evelyn ,Tom , Alice, Christine and Geral 07/05/2008 £100.00 £28.21 Hope it all goes to plan. Well done for even attempting it Eddie. 
Oscar and the Youngs 07/05/2008 £25.00 £7.05 Way to go Eddie! xxx 
Suzanne Aldridge 07/05/2008 £20.00 n/a Best of luck on the day 
Claire, Paul, Rebecca, Sam and Beatrice 06/05/2008 £50.00 £14.10 Best of luck for you all. Next time Sam will run along with you Eddie!  
The Fox Family 06/05/2008 £50.00 £14.10 What a fantastic effort, Good luck Eddie!! 
Martha and family 05/05/2008 £25.00 £7.05 Hope the sun shines and you all have a fab day. Well done. 
Sylvia 05/05/2008 £50.00 £14.10 Go Eddie! What a great thing you're doing. Hope you enjoy every step of the way! x 
Stuart and Jan 04/05/2008 £25.00 £7.05 Good luck Eddie 
Frederika, Ingrid, Annabel and Phil 01/05/2008 £100.00 £28.21 Will be wishing for sunshine and a gentle breeze for you all! xxxxx 
Jack, Ruby & Kit 01/05/2008 £15.00 £4.23 Have lots of fun! 
Lucy, Jon, Patti and Dave 30/04/2008 £20.00 £5.64 What a fantastic effort - happy walking all! x 
clare, nick, alice, jamie and emma 30/04/2008 £20.00 £5.64 good luck 
Matthew and Muchmores 30/04/2008 £50.00 £14.10 Eddie I can't believe you are going to walk 7 miles - good luck and tell us all about it! Matthew x 
Keta Hansen 30/04/2008 £50.00 £14.10 Go Eddie go! love Hebe x 
Bessie 30/04/2008 £20.00 £5.64 Go Go Go Eddie 
Sophie & Co. 30/04/2008 £15.00 n/a Good Luck to you all x 
Dominique 30/04/2008 £20.00 n/a Good luck guys! 
Jersey Kemberys 30/04/2008 £50.00 n/a I'm going to tell my two about this the next time they complain about a tiny stroll on the beach. Top effort. 
Caitlin and family 30/04/2008 £100.00 £28.21 Well done Eddie. Do you get an ice cream at the end of it? 
Joe and Zack 30/04/2008 £100.00 £28.21 Well done for doing this Eddie. We'll be thinking about you 
Maggie, Daan, Charlie & William K 30/04/2008 £50.00 £14.10 Very good luck - we are thinking about you! 
Tatty and the Brills 30/04/2008 £50.00 n/a What a fab brother you are 
Thomas and the Kirkwoods 30/04/2008 £50.00 £14.10 What a great thing to do Eddie - best of luck, and have fun! 
Charles and Sally 30/04/2008 £50.00 £14.10 Will Daddy beat your time the next day ?  
John Kapp 30/04/2008 £50.00 £14.10 With love 
Harry and the Halls 30/04/2008 £50.00 £14.10 Eddie, very good luck with your tremendous trek 
Molly Nunn & family 29/04/2008 £50.00 £14.10 Well done Eddie - Good luck! 
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*Total donated online: £1,520.00
Amount raised offline: £2,020.00
Gift Aid plus supplement: £342.69
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