My story

Early in 2011 my father was diagnosed as being terminally ill with Motor Neurone Disease (MND). For those unaware, MND is a muscle wasting disease, slowly shutting down ones strength and mobility, to a point where 24hr care is required.

This diagnosis has devastated our family, and each of us has dealt with it in our own way. Yet, however grave the news, as a family (and with amazing friends) we still stand together strong.

In coming to terms with the disease I have come to realise that the support offered must extend well beyond the direct scope of my family. I wish to tackle the disease head on...Primarily I intend to financially support the hundreds of families in the UK already living with the disease who are struggling to cope in providing basic care and living aids for their loved ones.  Secondly, it is my hope that a cure for such a terrible disease can be developed, so that in the future, other families will not be befallen the same fate as mine.

It is for this reason I have decided to start by conducting a series of charity events over 2012 for the MND Association. This will include walking ‘3 peaks’ in 24hrs, a cycle challenge, and a charity ball (to name but a few at the present time!) However this money raised will contribute to the minimum of £3500 required in sponsorship for me to trek to Everest Base Camp in 2013, walking a total of 120km to an altitude of over 5500m. At present Everest is the number one objective, however following this, other endurance events including Kilimanjaro is in the pipeline.

Already, word of my intent has spread like wildfire thanks to the wonderful world of Facebook (and my mum!) and I am aware that many people are conducting their own feats and events in aid of raising money to sponsor my attempt at Everest.

The immediate target is a minimum of £3500, however those who know me, know that I am not one for ‘minimum’ and intend to take the fundraising as far as possible. I therefore appeal to anyone wishing to contribute to my cause that they click on the link below and donate via ‘Just Giving’. Every penny counts, and each and every penny raised is met with the upmost of gratitude from not only me but also my family.

As an indication of where your money is going, here are some examples of what your money achieves:

·         £15 buys an adapted cutlery set. For someone with MND it’s more than just a cutlery set, it’s the dignity of being able to feed yourself.

·         £50 funds laboratory equipment for a days vital research into finding out the causes of MND.

·         £150 operates the MND Connect support and information line for half a day – having someone to talk to really can make a world of difference.

·         £500 funds the installation of a stair lift – anything that can extend independence and allow someone to stay in their own home is so important.

·         £1,000 buys a riser recliner armchair to help maintain a level of mobility for those who can no longer stand unaided.

·         £3,000 funds an MND expert researcher for one month and keeps the hope of a cure alive.

 

Best wishes to you all,

Ben Lannie

 

 

My gallery 2

My Team

Team photo
Shifnal Half Marathon 2012

My company

My charity

Motor Neurone Disease Association

Motor Neurone Disease Association

Charity Registration No. 294354

The Motor Neurone Disease (MND) Association is the only national organisation in England, Wales and Northern Ireland dedicated to the support of people with MND and those who care for them. Our mission is to fund and promote research to bring about an end to MND. Until then we will do all that we can to enable everyone with MND to receive the best care, achieve the highest quality of life possible, and die with dignity. We will also do all that we can to support the families and carers of people with MND. Our vision is of a world free of MND.

Donations 124

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I was Steve's Parent Constable...many years ago. Very pleased to have made contact again..good luck Ben

Donation by Jacky on 29/03/13

Donation by Tony Hill on 29/03/13

£10.00

+ £2.50 Gift Aid

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Hope the expedition is a great success and your efforts help towards this very worthwhile cause.

Donation by Mark Stephens on 24/03/13

£10.00

+ £2.50 Gift Aid

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you're a star Ben, don't ;eave your house keys up there!!!

Donation by Andy Quick on 22/03/13

£20.00

+ £5.00 Gift Aid

Donation by Anonymous on 21/03/13

£10.00

+ £2.50 Gift Aid

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Lots of Love xx

Donation by Sandy & Cyril on 19/03/13

£50.00

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Well done Ben i'm very proud of you for all you have achieved.

Donation by Lisa O'Neill on 18/03/13

£20.00

+ £5.00 Gift Aid

Donation by Anonymous on 16/03/13

£20.00

+ £5.00 Gift Aid

Donation by Sarah Newbury on 15/03/13

£10.00

+ £2.50 Gift Aid

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Good Luck Ben

Donation by Katherine Kelly on 15/03/13

£16.00

+ £4.00 Gift Aid

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Good luck Ben! x

Donation by Sian Thomas on 15/03/13

£10.00

+ £2.50 Gift Aid

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Thanks Ben & Good Luck! My mom passed away this time last year from MND x

Donation by julie paterson on 14/03/13

£5.00

+ £1.25 Gift Aid

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Good luck from leanne, will and keira-mae xx

Donation by Leanne Kelly and William Kelly on 14/03/13

£20.00

Good luck Ben x

Donation by Margaret Cooper on 14/03/13

£20.00

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Good luck Ben, a fantastic thing to do for an amazing cause close to us all.

Donation by Greg Broadhurst on 14/03/13

£20.00

+ £5.00 Gift Aid

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Good luck Ben!

Donation by Antonia on 11/03/13

£20.00

+ £5.00 Gift Aid

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Best of luck Ben xx

Donation by Shann & Mike on 07/03/13

£30.00

+ £7.50 Gift Aid

Donation by Anonymous on 03/03/13

£10.00

+ £2.50 Gift Aid

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Good Luck Ben!

Donation by tim sheffield on 02/03/13

£50.00

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Good Luck Ben We are thinking of you all x

Donation by Katherine Kelly on 01/03/13

£40.00

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Good Luck & Well Done :) x

Donation by Kirsty French on 26/02/13

Donation by Pam Jones on 26/02/13

£10.00

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Good luck Ben, proud of you xxxxx love Bec

Donation by Rebecca Edwards on 26/02/13

£10.00

+ £2.50 Gift Aid

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Good luck Ben"

Donation by Sarah Wheale on 26/02/13

£20.00

+ £5.00 Gift Aid

Good luck mate.

Donation by Darren Brownfield on 17/02/13

£50.00

+ £12.50 Gift Aid

Donation summary

  • * Online donations£5,135.00
  • Offline donations£25.00
  • Text donations£0.00
  • Total raised£5,160.00
  • Gift Aid£446.50

* Charities pay a small fee for our service. Find out how much it is and what we do for it.