Raised so far: £1,475.00
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My story

 

Thanks for taking the time to visit my JustGiving page.

As many of you will know, Talia was born back in March 2008. At the time all seemed well, but after 2 or 3 weeks she was having some difficulty breathing. Long story short, Talia spent the next week in our local hospital while doctors tried to identify what was wrong. We were referred to the Evelina Children's Hospital who wondered if she might have a subglottic hemangioma - essentially a birthmark in her windpipe, blocking her airway. We returned home, as at that time all was still ok and more time was needed to see how things developed. A week later Talia was rushed by ambulance to the Evelina - her situation had dramatically worsened and Talia no longer had the strength to breath; for an hour or so she was kept going with adrenalin and steroids until the theatre was ready to try and secure an airway. Once secured Talia was stable and returned to Intensive Care. The next day she was back in theatre and diagnosed with a subglottic hemangioma. This is a very rare condition - perhaps a dozen babies a year are born with it. But as you can see from the photos, it is something that requires enormous skill and care to deal with. 

Talia remained at the Evelina for just over two months. In that time Alev and I received training in how to care for Talia, how to change her tracheostomy tube, managing emergency situations and recovery techniques. Quite simply, if it was not for the incredible expertise at the Evelina I would not have been able to also post the above photos of Talia on holiday this year. Those that know Talia know she is a fit and healthy girl - full of life, fun and love. And all only possible because of the care we received at the Evelina.

So this September 27th I will be running a Half Marathon from London's O2 to raise money for the people whose skill and care allowed Alev, Ryan, James and I to bring our Talia home. I would be enormously grateful if you are able to sponsor me in this event. It is of course impossible to put a price on the difference the Evelina has made to our family, and also the thousands of others they help. But this can hopefully be a start...

Many thanks.

Simon, Alev, Ryan & James.

xxxx

ps: Please take a moment to go through the photos and watch the video to really appreciate how much skill and care Talia has received to be where she is today.

 


 

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Good to meet you, we are happy to donate to such a worthy cause. James & I will miss Adrian very much & our love goes out to all the family x Donation by Jenny Tenniswood 23/10/09  

£25.00 + £7.05 Gift Aid

Good luck Simon . We miss Adrian very much . Sending our love to all the family . Leon & Alex Buck Donation by Leon Buck 23/10/09  

£50.00 + £14.10 Gift Aid

In loving Memorie of Adrian, for all the wonderful times we had together. Love Carole and Family Donation by Carole Miles 22/10/09  

£25.00 + £7.05 Gift Aid

In memory of Adrian for all the many happy times we spent with him. Donation by Colin & Kay Johnstone 22/10/09  

In recognition of your gallant efforts running for your daughter and my dear uncle who we will all miss greatly. Donation by Neil Moore 22/10/09  

£60.00 + £16.92 Gift Aid

Simon you have a beautiful daughter & i'm sure Adrian is watching over you all. We all miss him from Leigh, Chris & all at Teccom Donation by Teccom Ltd 21/10/09  

£50.00

In memory of Adrian, a true gentleman, one of whom we have fond memories. Donation by Kathleen Buck 21/10/09  

£25.00 + £7.05 Gift Aid

In memory of Jim (Adrian) who always bought a smile to work with him, he will be sadly missed. Donation by Water Solutions 21/10/09  

£25.00

In Loving Memory of Adrian from Colin Pauline and family. Donation by Colin Reynolds 21/10/09  

£30.00 + £8.46 Gift Aid

For 'Our Jim' (Adrian) we miss our cuppa's and chats in the morning. Always with a smile & laughter Donation by Lianne,Elaine, Kev and John (Moulins) 21/10/09  

£50.00

In loving memory of Adrian a childhood family friend.Our thoughts are with all the family at this sad time. Donation by Jackie & Peter King 20/10/09  

£20.00 + £5.64 Gift Aid

Donation made in the memory of Adrian. Sending you all our love at this sad time. Love CJ, Tree & Samuel xxx Donation by Claire O'Connor 19/10/09  

Donation by Barbara Wingrove 18/10/09  

£25.00 + £7.05 Gift Aid

In memory of Adrian, with love from Kellie, Neil and George Donation by Kellie Dare-Williams 17/10/09  

£25.00 + £7.05 Gift Aid

This donation is made to the memory of Adrian. Our thoughts are with his family at this sad time. Donation by Susan & Peter Cane 16/10/09  

£10.00 + £2.82 Gift Aid

In Memory of Adrian and our thoughts to all the family. A brilliant cause and very happy to donate to a wonderful hospital. Donation by Julie, James, Eleanor and William Spencer 14/10/09  

£20.00 + £5.64 Gift Aid

Donation in memory of Adrian Moore. Sylvia, Gemma and Iain are in our thoughts. Donation by Nigel & Sue 13/10/09  

£20.00 + £5.64 Gift Aid

Running? Blimey! Rather you than me :) All the best for the future. Donation by mike + hayley 02/10/09  

£50.00 + £14.10 Gift Aid

You and running - wish I'd seen that! Donation by Alan Waterfield 02/10/09  

£20.00 + £5.64 Gift Aid

Well done :) Donation by Tim Bennett (Impmad2000) 02/10/09  

£20.00 + £5.64 Gift Aid

Well done Simon! Donation by Stephen (69Olive) 01/10/09  

£25.00 + £7.05 Gift Aid

Well done Simon. All the best wih your little one. Donation by Adam Miller (abm914) 29/09/09  

£30.00 + £8.46 Gift Aid

well done simon - the drive with ambulamce passing must have been one of lifes defining moments - again all my thoughts with you and family Donation by paul brewster (pb911) 29/09/09  

well done Simon and all the best for the future Donation by Helen Goff 29/09/09  

£10.00 + £2.82 Gift Aid

Donation in Memory of friends, family member lost. Donation by A. Chaloner and Team 28/09/09  

£40.00 + £11.28 Gift Aid

Good luck Si. I'll pop down and watch you after I've finished my fry up! Donation by Simon Taylor 25/09/09  

£20.00 + £5.64 Gift Aid

You will write an event into the life of the little girl. Well done Simon; Have a lovely day. Donation by Brian Hoadley 24/09/09  

£25.00

Good luck Si, we hope it goes well and we'll be rooting for you every step of the way. All the best! Donation by Karl, Chloe, & Ifan 21/09/09  

£20.00 + £5.64 Gift Aid

Good Luck Simon. We are sure all your hard training will pay off on the day. Eddie & Nina xx Donation by Nina Ertan 19/09/09  

£150.00 + £42.31 Gift Aid

Good luck! Donation by Pippa Rudman 16/09/09  

£10.00 + £2.82 Gift Aid
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* Total raised online: £1,475.00
  Offline donations: £0.00
  Gift Aid plus supplement: £373.72

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