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On the 6th March 2014, we were blessed with a beautiful little girl. Betsy weighed a healthy 9lbs 10ozs at birth and showed no signs of any problems. 

However, when Betsy was just eight weeks old, we realised something wasn't quite right. After a fraught few weeks we were told that she has a Mitochondrial disorder which presented itself in Betsy failing to thrive, thickened heart muscle and high amounts of acid in her blood. As she is currently under investigation, we still don't know how this condition will affect her health or life expectancy. 

According to recent research about 1 in 200 people carry a mitochondrial genetic defect. Not all of these people will go on to develop the illness. The real risk of developing or being born with this condition is around 1 in 5000.  There is currently no cure, only methods to manage the different symptoms. We would like to raise awareness and funding for research in order to beat this condition, so that no more families have to endure what we are going through. 

We have held a number of events, including runs, sporting competitions, quiz nights, bake sales and balloon launches. Thank you to everyone who have helped us to raise the profile of Mitochondrial Disease and of course the money that we have collected so far. We would appreciate your continued support so please contribute as much as you can to help research a prevention and cure for Mitochondrial Disease.

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