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Billie Butterfly raising money for child brain tumour research
Event: Billie Butterfly Fund
£4,522.00 raised
61 donations
My Target:
£4,522.00 raised so far
How to make a donation
Donate online at - www.justgiving.com/billiebutterflyfund
By mobile internet Scan this code on your smartphone to go straight to Dicky Harrison's page.
By text message to donate £10 Text KDHI92 £10
to 70070
My story
Billie Bainbridge was a 5 year old little girl with an inoperable brain tumour. She lost her fight against this cruel disease and died peacefully at home on 1 June 2012.
The Billie Butterfly Fund was set up to raise funds for her treatment. In accordance with the terms of her Trust, money which was not used for her treatment is being given to research into child brain cancer in the UK.
Billie was an exceptional and brave little girl. In her name we now want to raise more funds for child brain tumour research. Brain tumours are the biggest cancer killer of children in the UK but research is woefully underfunded. Please help us to raise money so that children like Billie have a better chance of beating this terrible disease.
ABOUT BILLIE: Until the start of June 2011, Billie was just like any other lively 4 year old child, full of life and looking forward to starting school in September.
Then without warning she began to have difficulty swallowing, her eyes started drooping and she became wobbly on her feet. Within two days she had a brain scan and was diagnosed with the most serious type of brain stem cancer. This cancer is inoperable because the tumour is where the most vital functions are located. Radiotherapy is used to shrink the tumour but frequently it starts to grow again more aggressively and survival rates are poor.
As if this wasn't bad enough, Billie's mother Terri was diagnosed with breast cancer a few months earlier and had surgery to remove a large tumour.
Apart from radiotherapy there is no other treatment available in the UK for Billie's type of brain tumour. So after talking to cancer charities and to other families with the same experience, and an exhaustive search for all possible treatments anywhere in the world, many of them experimental, the decision was made to seek treatment in America.
After 5 weeks in the USA in autumn 2011, Billie continued her treatment at home in the UK monitored by her own doctors.
Any experimental treatment attracts widely different views and the family knew there were no guarantees, but were not prepared to sit back and do nothing. There was a chance that it might improve her chances and it might well have helped to extend her life. However, in the end she could not beat the dreadful statistics for this sort of tumour. Billie died peacefully at home on 1 June 2012, nursed to the end by her devoted parents Sam and Terri, and surrounded by her family. She was a special, greatly loved, brave little girl, and will never be forgotten.
Please donate what you can to support research into this terrible disease.
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My gallery 3
My charity
Brain Tumour UK
Charity Registration No. 1117538
The Joseph Foote Trust and Brain Tumour UK have joined forces to create a new, larger Brain Tumour UK. Brain Tumour UK gives help today and provides hope for tomorrow by delivering breakthrough support, information and research on the path to the cure.
Donations 61
Donations raised from The Bishop Blaize and Quay Toning and fitness You are forever in our thoughts Billie lots of love Nicky
Donation by nicola chadwick on 10/04/13
£100.00
+ £25.00 Gift Aid
Donation from LV= charity book and CD sales
Donation by Richard Wallis on 25/01/13
£25.00
With love
Donation by Jacob MacLellan on 16/12/12
£119.00
+ £29.75 Gift Aid
Dear Billie, in your memory we organised another Halloween Party at Stockleigh Pomeroy as you enjoyed it so much last year Forever in our hearts x
Donation by Militsa Pribetich-Gill on 06/12/12
£100.00
+ £25.00 Gift Aid
Missing you always, love from Harrison x
Donation by martin oram on 17/11/12
£100.00
+ £25.00 Gift Aid
Funds raised by LV= staff by selling books and CDs on behalf of this excellent cause
Donation by LV= Charity Book Sale on 09/10/12
£65.00
Donation by Anonymous on 11/09/12
£27.00
I hope no one has to go through what this little girl and her parents had to experience.
Donation by - on 02/08/12
Billie's story inspired me to run the Manchester 10K to raise this money for Brain Tumour UK. So sorry for your loss.
Donation by Andrea Thomas on 11/07/12
£125.00
+ £31.25 Gift Aid
Donation by Steve Hulance on 09/07/12
£5.00
+ £1.25 Gift Aid
Donation from sales of books and CDs at LV= Exeter
Donation by LV= Exeter Charity Book Sales on 09/07/12
£52.00
Donation by Anonymous on 09/07/12
£15.00
+ £3.75 Gift Aid
From The Deightons. Well done Lisa on the Billie Butterfly tattoo (done on 6 July 2012 by Abi at INK, Exeter).
Donation by All of The Deightons on 07/07/12
£15.00
+ £3.75 Gift Aid
Well done on the Billie Butterfly tattoo - Lisa Deighton! (Ms Parker, Imogen, Sophie and Faybia from St Peters School)
Donation by Ms Parker, Imogen, Sophie and Faybia on 07/07/12
£5.00
+ £1.25 Gift Aid
For the Billie Butterfly tattoo done on Friday 6 July 2012 on Lisa Deighton
Donation by Angie Canning on 07/07/12
£10.00
+ £2.50 Gift Aid
Donation by LV= Exeter IT Dep on 02/07/12
£16.00
+ £4.00 Gift Aid
For the little girl who has and will continue to touch people's lives. Shine on beautiful Billie xxxx
Donation by nikki toomer on 29/06/12
£365.00
+ £91.25 Gift Aid
with love, Margaret and Brian
Donation by Brian Mapledoram on 23/06/12
£20.00
+ £5.00 Gift Aid
Donation by Francis Potts on 21/06/12
£20.00
+ £5.00 Gift Aid
Thinking at this sad time. This is a small donation collected by clients at Reflexetions Beauty salon.
Donation by Kelly Bowyer on 21/06/12
£23.00
+ £5.75 Gift Aid
Love to all family and friends, may the beautiful butterfly rest in peace xx
Donation by Jules and Reds on 18/06/12
£10.00
+ £2.50 Gift Aid
Theresa, Sam & Joe, all our love at this sad time. Jo, Richard & family.
Donation by Jo Griffith on 17/06/12
£40.00
+ £10.00 Gift Aid
Although I didn't know Billie, I am sorry to hear this sad news. (from a friend of Richard Bongard) x
Donation by Teresa Smith on 15/06/12
£10.00
+ £2.50 Gift Aid
So sorry to hear of your terrible news, thinking of you all. We all send our love x
Donation by Michele Maiden & Family on 14/06/12
£10.00
Donation by Anonymous on 14/06/12
£10.00
+ £2.50 Gift Aid
Donation summary
- * Online donations£4,522.00
- Offline donations£0.00
- Text donations£0.00
- Total raised£4,522.00
- Gift Aid£448.25
* Charities pay a small fee for our service. Find out how much it is and what we do for it.
