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BoardFree for Lowe Sydnrome

Dave Cornthwaite is raising money for Lowe Syndrome Trust
“Dave Cornthwaite's Fundraising Page”

on 16 January 2008

Donations cannot currently be made to this page
The Lowe Syndrome Charity is run by parents for medical research for Lowe Syndrome (& Dent's disease) families. Babies are born with multiple symptoms including cataracts in both eyes, failure to thrive, weak muscles and bones, kidney problems, cysts & autism.

Story

Since 2005 BoardFree has supported the Lowe Syndrome Trust through the medium of long distance skateboard journeys. Many skate journeys are currently underway in support of Lowe and other charities, but this is BoardFree's central sponsorship page where people can show an appreciation of what we do.

Lowe Syndrome (or Oculo-Cerebro-Renal syndrome) is caused by a DNA mutation that effects the eyes, brain and kidneys of predominantly young male sufferers. Babies are born with bi-lateral cataracts, hypotomia (muscle weakness), kidney problems (wasting of essential nutrients) impaired growth, intellectual impairment and later may suffer brittle bones, arthritis, rickets, epilepsy (seizures) and behavior problems (autistic spectrum disorder). Many also have cysts and dental problems. 

We will continue to do what we can to help the Lowe Syndrome Trust find a cure for the disease, please help where you can.

Visit www.boardfree.co.uk to find out more about BoardFree's work.

Donating through this site is simple, fast and totally secure. It is also the most efficient way to sponsor me: Lowe Syndrome Trust will receive your money faster and, if you are a UK taxpayer, an extra 28% in tax will be added to your gift at no cost to you.

Donation summary

Total
£155.00
+ £16.92 Gift Aid
Online
£155.00
Offline
£0.00

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