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Congential Disorders of Glycosylation (CDG) is an umbrella term for a very rare group of diseases that causes severe disability. There is no known treatment or cure. As the disease is so rare, there are very few children in the UK affected. CDG UK provides a support network and a patient voice.
http://www.cdg-uk.org
cdgukcontact@gmail.com
CDG UK Registered charity number HMRC Registered
"Lots of love to Ruby, mum and dad and all family xox "
Kathleen Moses donated
$60.00 + $0.00 Gift Aid
"Thinking of Ruby ❤️"
Steph Moses donated
"Little Bossie, helping make the best biltong and driving her Mom and Dad. Beautiful souls have big purposes."
Kickass Koeksisters donated
£20.00 + £5.00 Gift Aid
"In loving memory of Eva"
Veronica McGuire donated
£50.00 + £12.50 Gift Aid
"Donating in memory of Eva. So sorry for your loss xxx"
Sarah and Ed Randall donated
£20.00 + £0.00 Gift Aid
"Donating in memory of Eva - a girl who brought joy to so many with her huge smile and infectious laugh. I will always remember our many days out together. Rest in peace beautiful Eva x"
Becca Doggett donated
£10.00 + £2.50 Gift Aid
GRK Civils Ltd has raised $11,289.94 so far
I'm Helping raise awareness of CDG for GRK Civils Ltd because we want to help advance research on this condition
Alice Cregan has raised $2,222.96 so far
I'm Raising awareness for CDG for Alice Cregan because My beautiful daughter isla-rose has been diagnosed
Stephen Oneill has raised $1,467.36 so far
I'm Steve is going green for Stephen Oneill because today is CDG Awareness Day
Barnaby Cole has raised $237.29 so far
I'm I am holding a comedy night at The Wheatsheaf Pub for Barnaby Cole because of my nephews Ben and Bobby Burgess-Biggerstaff