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Chris's Ependymoma Treatment Appeal

Helen Bulbeck is raising money for Brainstrust
“Helen Bulbeck's fundraising”

on 30 March 2010

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We help people diagnosed with a brain tumour. We aim to give everyone diagnosed access to the resources that will put them back in control. We enable brain tumour patients and carers to become resilient and to utilise brain tumour support resources from all providers to their full potential.

Story

<p>Chris was only 8 years old when he was rushed to Leeds General Infirmary&nbsp;suffering from pain behind his right ear, nausea and weight loss. After&nbsp;emergency surgery it was discovered that Chris had a rare brain tumour called&nbsp;an ependymoma. That was just the start of an epic battle to try and beat the&nbsp;disease.</p> <p><span style="border-collapse: collapse; color: #222222; font-family: arial, sans-serif; font-size: 14px;">We are raising as much money as we can to help Chris with any treatments recommended by doctors but not available on NHS</span></p> <p>&nbsp;</p> <p>CHRIS'S STORY</p> <div></div> <p>Chris was only 8 years old when he was rushed to Leeds General Infirmary&nbsp;suffering from pain behind his right ear, nausea and weight loss. After&nbsp;emergency surgery it was discovered that Chris had a rare brain tumour called&nbsp;an ependymoma. That was just the start of an epic battle to try and beat the&nbsp;disease.</p> <p>&nbsp;</p> &nbsp;&nbsp; <div> <div>Under the expert care of his Neurosurgeon, Mr Van Hille, Chris made an amazing&nbsp;recovery and after radiotherapy was able to resume a near normal life. Sadly&nbsp;after 4 years of remission the cancer returned in his spine. The tumour was&nbsp;removed and further radiotherapy was given to the whole spine and rest of the&nbsp;brain together with 4 months of grueling&nbsp;chemotherapy. With courage and&nbsp;strength that astounded all Chris recovered well even taking up Martial Arts&nbsp;in a bid to improve his health earning 4 belts in Kung Fu.</div> <div></div> <div>After 3 years remission&nbsp;he received the devasting news that the cancer had&nbsp;returned at the top of his spine. Over the last 3 years Chris has had 6 more&nbsp;spinal tumours most of them removed during increasingly high risk surgery. We&nbsp;were delighted, therefore, when Chris was acepted for a new form of&nbsp;radiotherapy called Cyberknife, in London but devastated when funding for this&nbsp;was refused 3 times.&nbsp;</div> <div></div> <div>We want to raise money for this treatment&nbsp; which at&nbsp;present costs &pound;22,000, and for any other Doctor recommended treatments that&nbsp;could help but which are not routinely available on the NHS. Chris is a quiet,&nbsp;determined and modest young man whose interests include playing guitar (he&nbsp;performed in front of his Primary&nbsp;school&nbsp;after his first surgery)&nbsp;and who was&nbsp;nominated by his Secondary&nbsp;school for The Princess Diana Award for inspiring&nbsp;others with his courage and quiet dignity. Any surplus funds will be directed&nbsp;towards ependymoma research.</div> <div> <p>&nbsp;</p> <p>&nbsp;</p> <p>&nbsp;</p> <p>Thanks for taking the time to visit Chris's JustGiving page.&nbsp;Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving &ndash; they&rsquo;ll never sell them on or send unwanted emails. Once you donate, they&rsquo;ll send your money directly to the charity and make sure Gift Aid is reclaimed on every eligible donation by a UK taxpayer. So it&rsquo;s the most efficient way to donate - I raise more, whilst saving time and cutting costs for the charity.</p> <p>So please dig deep and donate now.</p> </div> </div>

Donation summary

Total
£40,287.35
+ £2,936.29 Gift Aid
Online
£30,172.35
Offline
£10,115.00

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