Story
29th June to 4th July 2009
We are cycling 50 miles a day for 4 days and 20 miles for 1 day in the middle of the tour in aid of the Muscular Dystrophy Campaign. I have Brittle Bone Disease (also known as Osteogenesis Imperfecta) and I know that this will be a tough challenge, but it will also be exciting, rewarding and for a worthy cause.I have a very good friend called Pete who is 21 and has Duchenne Muscular Dystrophy. He is clever and very bright and a really nice person. He uses an electric wheelchair and so has very limited use of his legs and arms.
How your sponsor money can help
£35
funds an hour of research that could lead to a treatment or cure to improve and lengthen people's lives.
£50
gives parents one hour with a specialist physiotherapist who can show them the valuable muscle-stretching techniques that could keep their child walking for longer.
£55
funds a Muscular Dystrophy Campaign Care Advisor for 1 hour, in which they can give the practical and emotional support needed by children and adults immediately after a diagnosis.
£148
funds the cost of the freephone Information Line so staff can provide vital support to families and healthcare professionals on a wide range of conditions and issues.
£900
allows the Joseph Patrick Fund to make a grant towards the cost of a child's powered wheelchair
You never know ,your money may find a cure, So please sponsor us!
Cheers
Charlotte, Dominic, Mark, and Barry.
