Story
<p class="iphone-update">We did it!! 23hrs 27 minutes! will get lots of pictures up tomorrow. It's been a tough 2 days - Beautiful on Ben Nevis with amazing views. Hard work at times and downright grim at others - torrential rain at 3am on Snowdon made the last peak feel very very hard but we did it. Thank you so so much for all your support and sponsorship!</p>
<p class="iphone-update">xxxxxx</p>
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<p class="iphone-update">Eek.. only a couple of days before we start!</p>
<p class="iphone-update">The generosity people have shown has been fantastic.</p>
<p class="iphone-update">It would be amazing if we could hit £2500, or maybe even £3000!?</p>
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<p class="iphone-update">Updated on Jul 9th 2011 at 9:30 AM from the JustGiving API</p>
<p>Off for our 'training session' on Ben Nevis today - looks fairly wet at the moment!</p>
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<p class="MsoNormal" style="margin: 0cm 0cm 0pt 3pt;"><strong><span style="font-size: 10pt; font-family: Verdana;">Thanks to all of you for supporting us on 'The Challenge'</span></strong></p>
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<p class="MsoNormal" style="margin: 0cm 0cm 0pt 3pt;"><strong><span style="font-size: 10pt; font-family: Verdana;">Thankyou so much to everyone who has donated.</span></strong></p>
<p class="MsoNormal" style="margin: 0cm 0cm 0pt 3pt;"><strong><span style="font-size: 10pt; font-family: Verdana;">After a phenomenal start to our fundraising we've increased our target to £1500. We're overwhelmed by peoples' generosity so far - we've obviously got to aim higher!</span></strong></p>
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<p class="MsoNormal" style="margin: 0cm 0cm 0pt;"><span style="font-size: 10pt; font-family: Verdana;">The Three Peaks Challenge involves climbing the highest mountains in </span></p>
<span style="font-size: 10pt; font-family: Verdana;"><span style="font-size: 10pt; font-family: Verdana;">Scotland</span><span style="font-size: 10pt; font-family: Verdana;">, </span><span style="font-size: 10pt; font-family: Verdana;">England</span><span style="font-size: 10pt; font-family: Verdana;"> and </span><span style="font-size: 10pt; font-family: Verdana;">Wales</span><span style="font-size: 10pt; font-family: Verdana;"> within 24 hours.<span style="mso-spacerun: yes;"> </span>We're aiming for a weekend in August and intend to start at about </span><span style="font-size: 10pt; font-family: Verdana;">7am</span><span style="font-size: 10pt; font-family: Verdana;"> at the foot of </span><span style="font-size: 10pt; font-family: Verdana;">Ben Nevis</span><span style="font-size: 10pt; font-family: Verdana;">, race up and down, jump in the car, do </span><span style="font-size: 10pt; font-family: Verdana;">Scafell Pike</span><span style="font-size: 10pt; font-family: Verdana;"> in the late afternoon and start </span><span style="font-size: 10pt; font-family: Verdana;">Snowdon </span><span style="font-size: 10pt; font-family: Verdana;">in the dark, in the early hours of the morning… finishing in time for a huge fry up in Llanberis!<span style="mso-spacerun: yes;"> </span>It should take around 14 hours of walking, covering 25 miles, climbing 10,000 feet, and the rest of the time will be spent driving the necessary 450 miles in the car.<span style="mso-spacerun: yes;"> </span></span></span>
<p class="MsoNormal" style="margin: 0cm 0cm 0pt;"><span style="font-size: 10pt; font-family: Verdana;"><span style="font-size: 10pt; font-family: Verdana;">(Our wonderful friend Mat Galvin has volunteered to drive!)</span></span></p>
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<div class="MsoNormal" style="margin: 0cm 0cm 0pt;"><span style="font-size: small; font-family: Times New Roman;"><strong><span style="font-size: 10pt; font-family: Verdana;">Why Are We Raising Money?</span></strong>
<p class="MsoNormal" style="margin: 0cm 0cm 0pt; text-align: justify;"><span style="font-size: 10pt; font-family: Verdana;">As most of you who know us will be aware, our daughter Ellie was born on 23<sup>rd</sup> October last year.<span style="mso-spacerun: yes;"> </span>She had serious complications at birth, and bowel surgery within her first 24 hours.<span style="mso-spacerun: yes;"> </span>The surgeons diagnosed a Meconium ileus, and told us that this was a sure sign of a condition called Cystic Fibrosis.<br /><br /></span><span style="font-size: 10pt; font-family: Verdana;">We knew relatively little about this life-shortening disease, but what we were told prepared us for the fact that Ellie was going to need life-long treatment, medication and physiotherapy.<span style="mso-spacerun: yes;"> </span>As well as the opportunity for the happy, family times we expected with our new daughter, over a number of years her health would severely decline, and ultimately she was unlikely to live into her 40s. </span></p>
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<p class="MsoNormal" style="margin: 0cm 0cm 0pt; text-align: justify;"><span style="font-size: 10pt; font-family: Verdana;">We were devastated at the thought of what Ellie would experience, the ways in which the illness would limit her life, and the impact this would have on Noah and the rest of our family.<br /><br /></span><span style="font-size: 10pt; font-family: Verdana;">Fantastically, 2 weeks later, against the expectations of virtually all the medical staff, Ellie’s test results came back negative.<span style="mso-spacerun: yes;"> </span>She required further surgery and several months in hospital to recover from the Meconium ileus, but with the fantastic care and support of all the Sheffield Children’s Hospital <span style="mso-spacerun: yes;"> </span>Staff, as well as our amazing family and friends, Ellie is now a completely healthy and happy 6 month old, full of giggles and energy.<br /><br /></span><span style="font-size: 10pt; font-family: Verdana;">It’s hard to even think back to the days of Ellie’s diagnosis.<span style="mso-spacerun: yes;"> </span>We obviously feel incredibly lucky; the importance of the health and life of our children is unquantifiable.<span style="mso-spacerun: yes;"> </span>We are so thankful to have avoided having our lives changed by CF.<span style="mso-spacerun: yes;"> </span></span></p>
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<p class="MsoNormal" style="margin: 0cm 0cm 0pt; text-align: justify;"><strong><span style="font-size: 10pt; font-family: Verdana;">Massive, massive thanks for supporting us on our challenge.<span style="mso-spacerun: yes;"> </span></span></strong></p>
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<p class="MsoNormal" style="margin: 0cm 0cm 0pt 3pt; text-align: justify;"><span style="font-size: 10pt; font-family: Verdana;">We've arranged that the money you’re donating will go directly to Sheffield Children’s Hospital’s specialist Cystic Fibrosis Unit, to help improve the treatment and care of children with CF in this region.<span style="mso-spacerun: yes;"> </span></span></p>
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<p class="MsoNormal" style="margin: 0cm 0cm 0pt 3pt; text-align: justify;"><strong><span style="font-size: 10pt; font-family: Verdana;">Chris and Anna<br /></span><span style="font-size: 10pt; font-family: Verdana;">xxx</span></strong><a></a></p>
<p class="MsoNormal" style="margin: 0cm 0cm 0pt;"><span style="font-size: 10pt;"><span style="mso-list: Ignore;"><br /></span></span><span style="font-size: 10pt; font-family: Verdana;">This webpage <a href="http://www.cftrust.org.uk/pressoffice/dayinthelife"><span style="color: #800080;">http://www.cftrust.org.uk/pressoffice/dayinthelife</span></a> explains the treatment regime that five people with CF undergo everyday. <span style="mso-spacerun: yes;"> </span>It’s really illustrates the impact the illness has on day to day life.</span></p>
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<p class="MsoNormal" style="margin: 0cm 0cm 0pt;"><strong><span style="font-size: 10pt; font-family: Verdana;">Some more information on Cystic Fibrosis and Sheffield Children’s Hospital:</span></strong></p>
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<p class="MsoNormal" style="margin: 0cm 0cm 0pt;"><span style="font-size: 10pt;"><span style="mso-list: Ignore;">-<span style="font: 7pt 'Times New Roman';"> </span></span></span><span style="font-size: 10pt; font-family: Verdana;">Cystic Fibrosis (CF) is one of the </span><span style="font-size: 10pt; font-family: Verdana;">UK</span><span style="font-size: 10pt; font-family: Verdana;">'s most common life-threatening inherited diseases.</span></p>
<p class="MsoNormal" style="margin: 0cm 0cm 0pt 21pt; text-indent: -18pt; mso-list: l1 level1 lfo1; tab-stops: list 21.0pt;"><span style="font-size: 10pt;"><span style="mso-list: Ignore;">-<span style="font: 7pt 'Times New Roman';"> </span></span></span><span style="font-size: 10pt; font-family: Verdana;">It affects over 9,000 people in the </span><span style="font-size: 10pt; font-family: Verdana;">UK</span><span style="font-size: 10pt; font-family: Verdana;">.</span></p>
<p class="MsoNormal" style="margin: 0cm 0cm 0pt 21pt; text-indent: -18pt; mso-list: l1 level1 lfo1; tab-stops: list 21.0pt;"><span style="font-size: 10pt;"><span style="mso-list: Ignore;">-<span style="font: 7pt 'Times New Roman';"> </span></span></span><span style="font-size: 10pt; font-family: Verdana;">Each week, five babies are born with Cystic Fibrosis.</span></p>
<p class="MsoNormal" style="margin: 0cm 0cm 0pt 21pt; text-indent: -18pt; mso-list: l1 level1 lfo1; tab-stops: list 21.0pt;"><span style="font-size: 10pt;"><span style="mso-list: Ignore;">-<span style="font: 7pt 'Times New Roman';"> </span></span></span><span style="font-size: 10pt; font-family: Verdana;">Each week, two young lives are lost to Cystic Fibrosis.</span></p>
<p class="MsoNormal" style="margin: 0cm 0cm 0pt 21pt; text-indent: -18pt; mso-list: l1 level1 lfo1; tab-stops: list 21.0pt;"><span style="font-size: 10pt;"><span style="mso-list: Ignore;">-<span style="font: 7pt 'Times New Roman';"> </span></span></span><span style="font-size: 10pt; font-family: Verdana;">Only half of those living with Cystic Fibrosis are likely to live past their late 30s.</span></p>
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<p class="MsoNormal" style="margin: 0cm 0cm 0pt 3pt; text-align: justify;"><span style="font-size: 10pt;"><span style="mso-list: Ignore;">-<span style="font: 7pt 'Times New Roman';"> </span></span></span><span style="font-size: 10pt; font-family: Verdana;">Over two million people in the </span><span style="font-size: 10pt; font-family: Verdana;">UK</span><span style="font-size: 10pt; font-family: Verdana;"> carry the faulty gene that causes Cystic Fibrosis - around 1 in 25 of the population.</span></p>
<p class="MsoNormal" style="margin: 0cm 0cm 0pt 21pt; text-indent: -18pt; text-align: justify; mso-list: l1 level1 lfo1; tab-stops: list 21.0pt;"><span style="font-size: 10pt;"><span style="mso-list: Ignore;">-<span style="font: 7pt 'Times New Roman';"> </span></span></span><span style="font-size: 10pt; font-family: Verdana;">If two carriers have a child, the baby has a 1 in 4 chance of having Cystic Fibrosis.</span></p>
<p class="MsoNormal" style="margin: 0cm 0cm 0pt 21pt; text-indent: -18pt; text-align: justify; mso-list: l1 level1 lfo1; tab-stops: list 21.0pt;"><span style="font-size: 10pt;"><span style="mso-list: Ignore;">-<span style="font: 7pt 'Times New Roman';"> </span></span></span><span style="font-size: 10pt; font-family: Verdana;">Cystic Fibrosis affects the internal organs, especially the lungs and digestive system, by clogging them with thick sticky mucus, resulting in chronic infections and inflammation in the lungs and difficulty digesting food.<br /><br /></span><span style="font-size: 10pt; font-family: Verdana;">There is currently no cure for Cystic Fibrosis, and those with CF have to adhere to a daily treatment regime of physiotherapy to help clear mucus from the lungs, antibiotics and other medication to fight inflammation and infection in the lungs, and enzyme tablets with every meal to help with digesting food.<br /></span></p>
<p class="MsoNormal" style="margin: 0cm 0cm 0pt 3pt; text-align: justify;"><span style="font-size: 10pt; font-family: Verdana;"> </span><span style="font-size: 10pt;"><span style="mso-list: Ignore;">-<span style="font: 7pt 'Times New Roman';"> </span></span></span><span style="font-size: 10pt; font-family: Verdana;">The Cystic Fibrosis Trust’s website has a wealth of information about the disease and its impact on the lives of young people who suffer from it.<span style="mso-spacerun: yes;"> </span><a href="http://www.cftrust.org.uk">http://www.cftrust.org.uk</a><br /></span></p>
<p class="MsoNormal" style="margin: 0cm 0cm 0pt 3pt;"><strong><span style="font-size: 10pt; font-family: Verdana;">Sheffield Children’s Hospital:</span></strong></p>
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<p class="MsoNormal" style="margin: 0cm 0cm 0pt 3pt;"><span style="font-size: 10pt;"><span style="mso-list: Ignore;">-<span style="font: 7pt 'Times New Roman';"> </span></span></span><span style="font-size: 10pt; font-family: Verdana;">Sheffield Children's Hospital (part of Sheffield Children's NHS Foundation Trust) is one of only four dedicated children's NHS trusts in the </span><span style="font-size: 10pt; font-family: Verdana;">UK</span><span style="font-size: 10pt; font-family: Verdana;"> providing integrated, highly specialist health care for children and young people<br /></span></p>
<p class="MsoNormal" style="margin: 0cm 0cm 0pt 3pt;"><span style="font-size: 10pt;"><span style="mso-list: Ignore;">-<span style="font: 7pt 'Times New Roman';"> </span></span></span><span style="font-size: 10pt; font-family: Verdana;">The Children's Hospital Charity supports and enhances the work of Sheffield Children's NHS Foundation Trust and funds four key areas</span></p>
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<p class="MsoNormal" style="margin: 0cm 0cm 0pt 75pt; text-indent: -18pt; mso-list: l0 level2 lfo2; tab-stops: list 75.0pt;"><span style="font-size: 10pt; font-family: 'Courier New'; mso-fareast-font-family: 'Courier New';"><span style="mso-list: Ignore;">o<span style="font: 7pt 'Times New Roman';"> </span></span></span><span style="font-size: 10pt; font-family: Verdana;">Specialist medical equipment<br /></span><span style="font-size: 10pt; font-family: 'Courier New'; mso-fareast-font-family: 'Courier New';"><span style="mso-list: Ignore;">o<span style="font: 7pt 'Times New Roman';"> </span></span></span><span style="font-size: 10pt; font-family: Verdana;">Research into the prevention and cure of childhood illness<br /></span><span style="font-size: 10pt; font-family: 'Courier New'; mso-fareast-font-family: 'Courier New';"><span style="mso-list: Ignore;">o<span style="font: 7pt 'Times New Roman';"> </span></span></span><span style="font-size: 10pt; font-family: Verdana;">New facilities to extend the range of treatment provided <br /></span><span style="font-size: 10pt; font-family: 'Courier New'; mso-fareast-font-family: 'Courier New';"><span style="mso-list: Ignore;">o<span style="font: 7pt 'Times New Roman';"> </span></span></span><span style="font-size: 10pt; font-family: Verdana;">Improvements to the hospital environment that will benefit patients, families and visitors</span></p>
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<p class="MsoNormal" style="margin: 0cm 0cm 0pt 6pt;"><span style="font-size: 10pt;"><span style="mso-list: Ignore;">-<span style="font: 7pt 'Times New Roman';"> </span></span></span><span style="font-size: 10pt; font-family: Verdana;">Projects funded by the charity have to be enhancements that are 'above & beyond' that of the standard NHS provision.</span></p>
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