Raised: 321%
Target: £150.00
Raised so far: £481.00
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My story

 
As most of you will know, my Gran'ma, Vera Hare, passed away in Janurary of last year after suffering terribly with Myasthenia Gravis. I am now taking part in the Great Eastern Run on 11th October 2009, (a half marathon, 13.1 miles) with a view to raising as much money as I can in order to help the Myasthenia Gravis Association continue with their excellent work. They helped my Gran'ma and the family members who were caring for her enormously by providing information and support at a very challenging time, for a condition that is little known and little understood. Any help is appreciated. 

Thank you.

Claire x 

Myasthenia Gravis is an auto-immune disease which is characterised by fluctuating and sometimes fatal, muscle weakness. It affects all ages and both genders. The charity aims to aid the discovery of improved diagnostic techniques and better treatment - ultimately to find a permanent cure for Myasthenia Gravis and similar disorders of the nerve-muscle junction. One of the aims of the Association's income is to help with the discovery of improved diagnostic techniques, and better treatment - ultimately to find a permanent cure for Myasthenia Gravis and similar disorders of the nerve-muscle junction. Currently the most important research group which they support is at the Institute of Molecular Medicine in the University of Oxford.

What are the symptoms of MG?

The hallmark of MG is weakness of voluntary muscles, which gets worse with repeated or sustained use of the muscle (fatiguable muscle weakness). Symptoms fluctuate and are typically worse at the end of the day, in hot weather, during or immediately after an infection, or during menstruation. MG presents in two main forms:

1) OCULAR MG affects the eye muscles only:

    Drooping of the eyelids (ptosis) is often intermittent, and can affect one or both eyes Double vision (diplopia) may be intermittent, and sometimes occurs only when looking in a particular direction.

2) GENERALISED MG patients usually have symptoms of ocular MG but there is also involvement of:

    Face and throat muscles, affecting smiling, speech (dysarthria), chewing and swallowing (dysphagia) Neck muscles, causing difficulties in holding the head up Limb muscles, causing difficulties in walking upstairs, and in holding the arms up (e.g. when brushing hair)  Breathing muscles, causing shortness of breath when exercising or when lying flat.
 

 What research is being done?.

Much has been learned about myasthenia gravis in recent years. Technological advances have led to more timely and accurate diagnosis, and new and enhanced therapies have improved management of the disorder. Much knowledge has been gained about the structure and function of the neuromuscular junction, the fundamental aspects of the thymus gland and of autoimmunity, and the disorder itself. Despite these advances, however, there is still much to learn. The ultimate goal of myasthenia gravis research is to increase scientific understanding of the disorder. Researchers are seeking to learn what causes the autoimmune response in myasthenia gravis, and to better define the relationship between the thymus gland and myasthenia gravis.

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This is the £68.00 donated offline by Annette, Elaine, Anna and Marion. Thanks to you all. Donation by claire tamblyn 22/10/09  

£68.00

Congratulations on your brill time!! All your training paid off!! Keep it up! Donation by Wendy 12/10/09  

£5.00 + £1.41 Gift Aid

Hope run went well and feet are not too sore! See you soon. Agnes and Alex Donation by Agnes Davidson 11/10/09  

£20.00 + £5.64 Gift Aid

Just in time...good luck from Germany! Donation by Marta De Nobili 09/10/09  

£10.00

I'm so impressed you have found time to train for this with three children and the impending move... Best of luck xx Donation by Sophie Jacobi 09/10/09  

£10.00 + £2.82 Gift Aid

Go girl!! I'm proud of you and very impressed that you find the time to train. Thinking of you on Sunday. xx Donation by Colleen Watson 08/10/09  

£10.00 + £2.82 Gift Aid

Good luck Claire - you're a complete star!! Donation by Graham & Gill Hammett 08/10/09  

£20.00 + £5.64 Gift Aid

Best of luck Claire from us both - enjoy it (through gritted teeth) and remember its not the winning, its the taking part. G'ma will be proud. Donation by Richard Harwood 07/10/09  

£40.00 + £11.28 Gift Aid

Best of luck on Sun!I'm so impressed with all the training you've put in.Enjoy the huge sense of achievement&sunday dinner after!Bx Donation by Bernie Higgins 06/10/09  

£20.00 + £5.64 Gift Aid

Good luck Claire! I'll be thinking of you....whilst I'm sitting down eating cake.... Donation by James Harwood 02/10/09  

£10.00 + £2.82 Gift Aid

Good luck Claire Donation by Max 30/09/09  

£10.00 + £2.82 Gift Aid

Go for it FB!! And other such sporting-style good luck wishes! xxxxxxx Donation by Lizzie 30/09/09  

£10.00 + £2.82 Gift Aid

Run Claire Run!! So proud of you. Love you xx Donation by Maddy Hinton 30/09/09  

£20.00 + £5.64 Gift Aid

Good luck Claire! Love from Chris and Jans xx Donation by Janine Wardle 16/09/09  

£10.00 + £2.82 Gift Aid

You are a star and a true running inspiration. I am sooooo proud of you. xxxxxxxxxxxxxxx Donation by Karen Houghton 03/09/09  

£20.00 + £5.64 Gift Aid

make sure theres a large glass of wine waiting on that finish line! Donation by becky gilley 01/09/09  

£20.00 + £5.64 Gift Aid

Good luck claire. Hope it goes well, I'll be thinking of you. X Donation by Kylie Green 31/08/09  

£15.00 + £4.23 Gift Aid

Some say she does this for enjoyment ........others that she simply enjoys the pain ....... all we know is, she's called The Stick!!! Donation by Clive Green 31/08/09  

£20.00 + £5.64 Gift Aid

Good luck darling - I'm sooo proud of you and I'm sure that, at last, Gran'ma is actually smiling! Donation by Judith Ireland 31/08/09  

£30.00

Be grateful you don't have to listen to the duck song all the way round... Donation by Nathan Tamblyn 31/08/09  

£15.00 + £4.23 Gift Aid

Mummee, mummeeee!! Donation by Abe Tamblyn 31/08/09  

£10.00

I'm running too! Donation by Cassius Tamblyn 31/08/09  

£10.00

Go Mummy! Donation by Felix Tamblyn 31/08/09  

£10.00
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* Total raised online: £413.00
  Offline donations: £68.00
  Gift Aid plus supplement: £77.56

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