Colleen Scales is fundraising for CMT United Kingdom

Colleen Scales's Fundraising Page

The Mazda London Triathlon 2009

on 01/08/2009

Photos (8)

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Team members:

Colleen Scales & Anthony Harwood

Raising money for

CMT United Kingdom

Charity Registration No. 1112370

CMT United Kingdom is the national support group for people affected by Charcot-Marie-Tooth Disease, also known as Hereditary Motor and Sensory Neuropathy. The organisation provides advice, support and information for people with the condition, family, carers and medical professionals.

Page owner

Colleen Scales

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Raised: 97%

Target: £1,000.00
Raised so far: £971.00

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My story

Come on sponsor us ... its tomorrow!!!

Hey,

So as you know I’ve decided to take part in a couple of sport events this year, the London to Brighton bike ride on 21^st June 2009 and the London Mazda Triathlon (Sprint distance) on August 1^st, and as I have to punish myself through a training regime I thought it’d be good to have someone to share the pain … hence Anthony’s reluctant decision to join me!!!

For those who know us we both love the great outdoors and are keen cyclists. We both like a challenge (worrying because we’re also both very competitive) but the main reason I am doing this is because I’m hoping to raise awareness of an illness which is pretty rare, but runs through my family.

The illness has been diagnosed as Charcot-Marie-Tooth (CMT) http://cmt.org.uk which is also sometimes referred to as Hereditary Motor Neuropathy. It is related to Motor Neurone disease and is a hereditary muscle wasting disease. The illness is progressive so from onset, the symptoms worsen with time. The individual has the ‘normal’ muscle distribution within the limbs however the motor neurones do not relay messages to the muscles enabling them to develop as would usually happen. The wastage is especially prevalent in the lower limbs, so this makes walking, and gripping objects in the hands increasingly difficult. Due to the lack of strength in the legs, balance is greatly affected, walking in most footwear is impractical and heels are impossible … much to the annoyance of female sufferers! In addition to the practicalities of everyday life, this is especially hard on young, sporty, outgoing and attractive people who have had to adapt their lives to accommodate the things which they simply cannot do.

The main point here is not that you guys feel guilt-ridden into spending a load of money donating to this charity, but to raise awareness. Hopefully if more people are aware, you’ll be less likely to stare at someone who walks in a slightly different way to you or push past someone leaning against something for balance in a pub … the amount of times I’ve been with a relative and this has happened it is infuriating!

The charity is currently working closely with the UCL hospital of neurology to identify the gene which may prevent sufferers from passing on the condition to their children, as well as treatments to ease the pain & discomfort, prevent progression of the illness, and of paramount importance, to offer counselling and support to the sufferers and their families.

I know you’re all probably sick of seeing these justgiving pages (god knows I am!) and we’re all skint etc but please spare some cash to this cause (even if it’s a small amount). CMT really needs the publicity and cash to help improve the lives of sufferers.

So all that’s left to say is wish us luck on the London – Brighton and the London Mazda Triathlon and if anyone comes down to either, keep your eyes peeled for me (I’m the one who’s face goes purple – not a good look!). Girls, hope I do you proud!

Cols & Tony :0

P.S if you're a UK taxpayer plese say so when you donate as they add a % of the money you donate!

	Well done both of you x Donation by Leah Walsh 10/08/09	£20.00 + £5.64 Gift Aid
	you are amazingly talented athletes. Glyn Donation by Colleen Scales 05/08/09	£5.00 + £1.41 Gift Aid
	hiya guys! hope it went well on the day (bet your still feeling the pain) and I really hope you make your donation target not far off now. love Donation by mnahill 04/08/09	£10.00 + £2.82 Gift Aid
	I am sure you guys did a grand job and much admiration for the effort you have put in. All the best, Jun Donation by JUNYEE MAN 03/08/09	£20.00 + £5.64 Gift Aid
	Sorry, bit late! Hope it went well. Donation by Kiran Kalia 03/08/09	£10.00 + £2.82 Gift Aid
	Good luck Colleen and Tony - From Chandu Donation by Morna Scales 01/08/09	£10.00 + £2.82 Gift Aid
	Hi you two, lots of luck for tomorrow, you can both do it. Will celebrate afterwards. Lots of love X Donation by anna and andy 31/07/09	£40.00 + £11.28 Gift Aid
	Good luck. I will be there to cheer you both on x Donation by Samantha Walsh 31/07/09	£15.00 + £4.23 Gift Aid
	Good luck love Catherine & louis Donation by Catherine Browne 31/07/09	£20.00 + £5.64 Gift Aid
	Guys what your doing is brilliant, you should be proud of yourselves!!!!! All the chaffing will be worth it Donation by George Cleary 31/07/09	£20.00 + £5.64 Gift Aid
	Good luck! xx Donation by Helen Walker 31/07/09	£10.00 + £2.82 Gift Aid
	Best of luck! Donation by Mary Kraitt 31/07/09	£10.00 + £2.82 Gift Aid
	Good luck hun....! xx Donation by Mary-Fe 31/07/09	£10.00 + £2.82 Gift Aid
	All your hard work will have been worth it when you get to that finish line. Lots of Luck xxxxxxxxxxxxxxxx Donation by Kara 31/07/09	£20.00 + £5.64 Gift Aid
	Good luck guys, don't forget to pack the vasaline, that chafing is a killer! Donation by Ollie Woodruff 31/07/09	£15.00 + £4.23 Gift Aid
	Oh go on then, here's a tenner to buy a couple of ponchos. x Donation by EZ 31/07/09	£10.00 + £2.82 Gift Aid
	So much effort & amazing courage! Good luck and we'll be cheering you both on. Luv mum and dad xx Donation by Mum & Dad 20/07/09	£100.00 + £28.21 Gift Aid
	Good luck to you both and enjoy the day Donation by Sarah Barstow 09/07/09	£10.00
	Good luck guys! Go for it! Donation by Arthur 09/07/09	£10.00 + £2.82 Gift Aid
	good luck!in bocca al lupo! Donation by francesco di rosario 09/07/09	£5.00 + £1.41 Gift Aid
	Steady pace through each stage, make up time on your exchanges... keep them simple. Don't forget to taper! Donation by Dana Foley 08/07/09	£11.00 + £3.10 Gift Aid
	Good luck!! x Donation by janet melville 08/07/09	£5.00 + £1.41 Gift Aid
	Good Luck! Donation by David Coles 07/07/09	£10.00 + £2.82 Gift Aid
	Go colin go tone! Donation by francis calabrese 07/07/09	£5.00 + £1.41 Gift Aid
	Do us proud hunny Donation by Anita Duane 19/06/09	£5.00 + £1.41 Gift Aid
	Good luck to you both xx Donation by Kelly Shipton 19/06/09	£5.00 + £1.41 Gift Aid
	As long as your bike doesn't look like a banana you'll be fine Colls. Good luck guys, we'll come and cheer you on at Excel. Donation by Alex&Helen 17/06/09	£20.00 + £5.64 Gift Aid
	Hey coll and tone!!Its brill what you are both doin for CMT.I wish you the best of luck ! Donation by Nick Day 17/06/09	£100.00 + £28.21 Gift Aid
	good luck to you both and good on you.x Donation by ruth harris 16/06/09	£10.00 + £2.82 Gift Aid
	Good Luck ... I'm very proud .... and think of your 6 pack ;) x x Donation by Scouse 16/06/09	£10.00 + £2.82 Gift Aid

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* Total raised online:	£971.00
Offline donations:	£0.00
Gift Aid plus supplement:	£271.05

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