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Aimee Evans raised £210 from 11 supporters
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Closed 20/11/2018
Weʼve raised £210 to to raise money for medical equipment for Cameron to help him gain stability , support and eventually walk unaided
- Funded on Tuesday, 20th November 2018
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Story
I've setup this group for Cameron,
as some of you know, Cameron suffers with a very rare genetic condition called Joubert Syndrome.
this affects Cameron's speech , balance, coordination , his breathing and has developmental delay.
there are only 4 known cases of Joubert Syndrome in Wales, and only around 500 in the world, this means it affects roughly every 1 in 100,000 people..
Cameron cannot walk , or talk, and cannot stand unaided due to poor balance and coordination.
despite all of this Cameron has over come so many hurdles through the last 7 year's of his life , and reached milestones we were told her never reach , he sat up unaided at the age of 2 and a half, he's able to weight bare with assistance , and he can even feed himself which is a massive achievement as he doesn't have very good coordination with his hands , although he has improved.
he's such a superhero and a superstar and he doesn't let his condition get him down or in the way.. and has just won the child of courage award through the local HERO awards for everything he's been through .
my reasons for setting up this group is because I plan to do some fundraising events for cam in order to get him a piece of equipment that will help him gain stability , core strength and the ability to stand unaided and eventually walk.
this bespoke device is called a HKAFO (hips, knees, ankle and foot orthosis)
This is a general orthosis system for anyone who requires maintaining an upright position of the body or who is in rehabilitation and learning to walk.
HKAFO is used to as a rehabilitation device to support therapy of lack of stability and control of the pelvis, hip joints and lower extremities in such conditions as:
spina bifida
hip dysplasia
multiple sclerosis
cerebal palsy
muscle dystrophias
traumatic brain injury.
so if you would like to help it know anyone who will be willing to help us raise money to get Cameron the equipment he needs
Thank you ever so much for your support we really appreciate it
Xxxx
Updates
2
- 6 years ago
Aimee Evans
6 years agoThank you so much for your generous donations, we really appreciate all your love and support and generosity xxxxxxxxxx
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- 6 years ago
Aimee Evans
6 years agoThank you so much for your donations already on Camerons just giving page and , we've had some amazing donations through Cameron's Facebook group too especially from a true kind lady with a heart of gold, Kay ! Also another £40 donated from Gail and carys , thank you so so much We cannot thank you enough for all your kindness , generosity and support , we truly are blessed to have such an amazing amount of support, this will mean the world to us and will make a world of difference to Cameron ❤❤
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Aimee Evans started crowdfunding
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Supporters
11
Stefan
Oct 2, 2018
£30.00
Anonymous
Aug 21, 2018
£20.00
Kirst kev tegs and Kieran x
Aug 19, 2018
Xxxx
£20.00
Anonymous
Aug 19, 2018
Pob bendith Cameron.
£50.00
Rhodri John
Aug 3, 2018
£20.00
Sarah James
Jul 28, 2018
Hope you hit your goal for cam 💙💙
£10.00
Anonymous
Jul 28, 2018
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