Our daughter has now turn 18 she doesnt fit in any boxes ,,when she was 16 she had a letter from her consltant telling her she could drop down dead at any time no one knows

how long Ella has she tries to live her life ,

Ella now does most of her treatment at home after spending nearly three years in children ward .Ella been taught by a nursing team from another hospital out of our county to do her own ivis, though her portcath, ella has to put her own needles in to her porta cath so she can have her own ivs at home, which she has to do three times a week and over 12 hours at a time, to keep her safe.

it has taken Ella many years to get were ella is now Ella spend nearly three years in hospital ,before this from the age of 18 months ella had health problems .which wasnt picked up until she was 6 then ella has spent many times hospital stays over the year missing out on normal life ,only to get worse until they relised she has other issues with her health.

over the years Ella missed most of her school years in the last five years due to her health ,not being well ,sleeping most of the time, due to not having good nutrition and very low potaasuim levels, we have watched Ella go down hill not knowing if she going to make it ,but we please to say now she has her treament at home, giving her a life line we dont know what ella going to happen in the long run ,we dont know if the hospital going to carried on with it we ,waiting to see in feb 2019 ,

we know ella needs this treament ,if she is turn down and cant have it any more we known what the out come would be for her ,ella has a twin sister that has been so good to her over the years spending lots of time away from her when ella been in hospital it good we have a family life even though we still deal with Ella,

These are photos of ella in hospital