hello
1st of all thank you very much for happening upon my page and reading my story.
A brief potted history of me is in my bio.
To be honest it wasn't until I was really rediagnosed with primary progressive MS that it hit home. I realised that everything I had been trying for years had come to nothing. There are no current treatments for progressive MS, although you always live in hope.
Having spent spent 7 years of my life on one form of drug treatment or another. I decided that it was a somewhat pointless task. So I stopped treatments. I no longer take addictive invasive, addictive, neuropathic painkillers. I gave steroid treatment chance and it didn't work. I tried disease modifying drugs but I didn't have the correct type of MS!
I try and help myself by eating healthily drinking plenty of water. I would love to tell you that I exercise regularly but, beyond stretching and general movement, well, sorry its an honest no.
I continue to work full-time. When I'm in my wheelchair at work(and this may sound completely alien to you) I have freedom of movement, I am able to move about independently, I am my own person, with my own personality, I am a useful person and I hope it stays the same for many years to come. However, with primary progressive MS you never know whether the next notch downwards will be in 25 days or 25 years.
We recently moved house, the most fantastic house for me. Access around the house is nearly there but I cant access the garden and the vegetable patch and the flowers. I want to be able to take my son and show him the mini beasts that live there, how to grow our food, how to take care of our chickens, how to appreciate the perfection of nature in all its forms.
And here's the thing, I cant get to the garden as its down some stairs. We thought that we would have help with this, but it turns out we are not able to access the grants available.
Would you help me fulfil my dream, it's a small dream. Get me to my garden.
Thanks for reading x