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Sarah Barton raised £10,641.5 from 383 supporters

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Closed 04/11/2016

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£10,641
raised of £12,000 target by 383 supporters

    Iʼve raised £10,641 to support the family of baby Marnie Brace, who at just 15 weeks old is in heart failure and in desperate need of a heart transplant.

    Eastbourne, United Kingdom
    Funded on Friday, 4th November 2016

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    Story

    Baby Marnie was born on the 10th May 2016 at the Evelina Children's Hospital in London. Straight away, the beautiful baby girl needed medical intervention and support to help her heart, and she was quickly diagnosed as having Noonan's Syndrome and hypertrophic cardiomyopathy.
    Effectively, Marnie's heart has to work extra hard to do even the simplest of things, even feeding. She struggled to gain weight, a term known as 'failure to thrive ' and soon had to be fed through a tube. Then, aged just 14 weeks, Marnie was blue-lighted from Hastings hospital, near her home in Eastbourne, back to the Evelina Hospital, where it was confirmed, a new heart is much needed.

    This fundraising page is to help raise funds to support Marnie, her parents Nick and Amy and older brother through this difficult time. Both mum and dad take it in turns to remain at Marnie's bedside at the London hospital. Meanwhile, the other parent returns to the accommodation to look after Marnie's older brother, Jonah, who only recently joined the family in London after having been looked after by relatives back home in Eastbourne. Mum, Amy, says that being a family again and having Jonah with them gives them strength.

    If we can ease some of the financial strain that this wonderful family faces, we'd be making the world a better place one pound at a time.

    https://www.organdonation.nhs.uk
    Remember to sign up to the organ donation register.

    Updates

    14

    • Sarah Barton8 years ago
      Sarah Barton

      Sarah Barton

      8 years ago

      We are devastated to say that beautiful Marnie has lost her battle. She passed away on Wednesday 26th October at 10pm with her mum and dad at her side. The date also marks 2 months to the day that she was placed on the heart transplant list and was the same day that her petition was published online. Please keep her family in your thoughts and keep sharing the petition: https://petition.parliament.uk/petitions/170316

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    • Sarah Barton8 years ago
      Sarah Barton

      Sarah Barton

      8 years ago

      We have started the 'Heart on Hand' campaign to show our respect for all organ donors. One organ donor can save EIGHT lives! We want to raise awareness of organ donation registration, especially of minors by their parents. Furthermore, we want a change in the law so ask you to sign the petition calling for an opt-out system: https://petition.parliament.uk/petitions/128473 Check out @marniebrace on FB to copy the blurb and complete the challenge. #braceyourself #teammarnie #savemarnieslife ❤

      Update from the Page owner

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    • Sarah Barton8 years ago
      Sarah Barton

      Sarah Barton

      8 years ago

      Today is a good day! The petition, which calls for a change in the organ donation law, went over the minimum 10k signatures which are required to trigger a response from parliament. Thanks to comedian Karl Pilkington & hundreds of others for sharing and signing! On top of this, Marnie continues to hold her own, fighting strong. Furthermore, the quiz night & raffle draw which was held on Friday 30th September raised an amazing £1567.92! Everyone has been so generous donating whatever they can. Big & small...it all helps. THANK YOU!

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    8 years ago

    Sarah Barton started crowdfunding

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    Page last updated on: 10/30/2016 20.29

    Supporters

    383

    • Lindsey Bebbington-Colbourne

      Lindsey Bebbington-Colbourne

      Oct 30, 2016

      Amy - I am hoping and praying 4 ur lil princess & all ur family. Take care my lovely - we miss u in Lincs!!!! Xxx

      £20.00

    • Anonymous

      Anonymous

      Oct 28, 2016

      £180.00

    • Anonymous

      Anonymous

      Oct 26, 2016

      £20.00

    • Ray Evans

      Ray Evans

      Oct 25, 2016

      Bless little Marnie. Our thoughts are with you and hope success in your search comes soon

      £20.00

    • Susan McCarley

      Susan McCarley

      Oct 24, 2016

      You and your sweet baby girl are in my thoughts and prayers.

      £50.00

    • Lindsey Ambler

      Lindsey Ambler

      Oct 24, 2016

      Marnie's story has popped up on my news feed as we have a mutual facebook friend. You and your strong little family are in my thoughts and I wish you all well

      £15.00

    • Anonymous

      Anonymous

      Oct 24, 2016

      With thoughts and prayers to you all

      £20.00

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    Sarah Barton

    Sarah Barton

    Eastbourne, United Kingdom

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