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Charlotte Thorpe raised £758 from 27 supporters
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Closed 21/11/2018
Weʼve raised £758 to Help correct the damage to liahs back and shoulders she has sustained from not letting her disability stop her from taking on the world
- Leek, United Kingdom
- Funded on Wednesday, 21st November 2018
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Story
As many of you know, our beautiful liah was born with a congenital condition called arthrogryposis, which affected the growth and development of her joints and muscles in her arms. We all know that liah doesn't let ANYTHING stand in her way, and she tries to do everything she can to keep up with her friends, such as partaking in several dance classes (which she is amazing at!) learning to play the violin (on her lap) along with her classmates.
She has also learnt to walk, feed herself, tie her shoe laces, brush her teeth ad dress herself. When we received the news of liahs condition when she was a few weeks old, we were told that it would be unlikely she would ever be independent. Needless to say, we were so happy that those doctors were wrong!
Unfortunately, all of this has come at a cost to liah. She has problems with her back and shoulders due to her using 'trick' manoeuvres to make the world accessible to her, which means that her back and shoulders are very misaligned. This causes pressures on places on her body that shouldn't and causes her pain, including dibilitating migraines that no adult, never mind six year old, should have to bear, and there is nothing the NHS can do to correct these problems, so it's something liah will have to live with for the rest of her life. So it was suggested to us by her orthopaedic surgeon that we try an osteopath. Again, this is not a treatment available on the NHS, so will need to be paid for privately. The total amount on this page is the cost for a year's worth of sessions.
Updates
2
- 7 years ago
Charlotte Thorpe
7 years agoThis is the current position of liahs spine and shoulders. As you can see, they are very out of line! Ever likely she gets migraines! I have drawn in the picture to show the curve in her spine, and the dots are the points on her shoulder blades. As you can see, they are very uneven!
Share this update to help us raise more
- 7 years ago
Charlotte Thorpe
7 years agoShare this update to help us raise more
Charlotte Thorpe started crowdfunding
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Supporters
27
Mussa Afzal
Mar 16, 2018
I sincerely hope you get the funds for the well needed treatment! Good luck!
£20.00
andy slater
Mar 15, 2018
liah,, member off staff not in office yesterdays cake sale,,but just gave me this £10 for you, andy
£10.00
andy slater
Mar 13, 2018
liah,,just done a cake sale at work,, every one sends there best wishes xxxxxxx andy
£60.00
Allie Jones Hawley
Mar 8, 2018
I have lived in constant pain since I was a child and am really inspired reading Liah's story! X
Alex M
Mar 2, 2018
£10.00
Emma Bradshaw
Feb 28, 2018
Hope she gets the treatment she needs to help x
£30.00
Sian and Gaz Chell
Feb 28, 2018
Good luck to Liah. X
£30.00
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Charlotte Thorpe
Leek, United Kingdom
No one likes to see their child suffer, but unfortunately lots of the time liah does. She takes several medications and spends quite a bit of time having appointments in hospital. There is no cure for her condition, but my only hope is to make her life more comfortable