80miles for jacksom .

This year Band of brothers are coming together for their biggest annual walk yet for Jackson’s smile. 25th 26th and 27th april 2019 Darren garwood, mark garwood, steve king and craig armitage (jacksons dad, uncles and grandad ) will be walking from snodland in kent to hasting, east sussex over 2 1/2 days. Our first nights stop will be in goudhurst, the second night in battle, leaving saturday morning to walk into hasting.

We are raising money to go towards a new special bed for Jackson to make him super comfortable and to ease our backs and allow for bedtime cuddles 😍For those of you that do not know Jackson’s story; Jackson has a rare disease- Krabbes. Krabbes is a life limiting disease which gave Jackson a life expectancy of 2. Starting life as a normal baby until 7 months when he started losing vital skills. Shortly after his 1st birthday we received the devastating diagnosis of Krabbes. Jackson is now 4! 💪🏻 We have followed our own path with his care. He has a specialised organic diet, takes CBD oil and uses a hyperbaric chamber regularly. He is now fully dependent on us. He is immobile, cannot speak and sadly lost his laugh a while ago. But he communicates in his own way, Jackson loves being read to sung to and enjoys as many cuddles he can get. It is our mission to give him as many life experiences, as much love and the best quality of life whilst he is here.