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Debbie Newell raised £330 from 21 supporters
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Closed 06/09/2019
Iʼve raised £330 to help fund specialised moulded seating to fit on to our Daughters wheelchair who has quadriplegic cerebral palsy and severe scoliosis
- Greater Manchester
- Funded on Friday, 6th September 2019
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Story
Eve is our cheeky, beautiful and smiley Daughter, she has quadriplegic cerebral palsy ( full time wheelchair user), which for Eve means all her limbs and body are affected, she is unable to support herself physically and is reliant on others for every aspect of her needs.More recently has developed severe scoliosis, a condition that has caused her spine to develop a curvature (which is now at 108°)this causes Eve to be in a lot of pain and discomfort which is made worse by her existing condition. Eve currently has a private funded power chair with a standard seating system. Since developing Scoliosis her seating no longer fits her shape and has become unsuitable and painful for her to be sat in it.More importantly we have been advised by her spinal surgeon that her powerchair needs urgently replacing with a much more suitable moulded seating system, unfortunately the NHS wont allow us to transfer her moulded seating manual chair to be transferred onto her (private) powerchair base. By reverting back to a manual wheelchair would mean taking away Eve's only form of independence. I can't begin to describe just how much of an amazing transformation we have seen in Eve since being able to use a powerchair, it enables her to travel around both inside and outside of the house without being pushed around. (Still supervised) You should have seen her making snow angels (aka tyre mark circles) in our recent snowfall "all by herself" or being able to go off in a mood (teenagers and hormones !) to her room "all by herself". Her powerchair has made her smile even more beautiful and precious. The pride she takes in being able to run into your ankles and "run" away is, (apart from being a little painful for us ) worth every bit of it. I hope this gives you some insight into why we are desperately trying to raise the funds for this moulded seating for her powerchair. Thank you very much for taking the time to read Eve's story.
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Supporters
21
Anonymous
Mar 12, 2019
Good luck xx
Gail Hutchinson
Mar 11, 2019
Good luck Eve, missing you 🤗
£20.00
Paul Bennett
Mar 10, 2019
Hope you manage to get the chair x
£10.00
Anonymous
Mar 2, 2019
With our love, any independence gained is too precious to lose c
Mike & Mandy
Mar 2, 2019
🤞❤
£20.00
Abbie
Mar 2, 2019
£10.00
Bernadette ONeal
Mar 1, 2019
Hope Eve gets the chair she needs soon x
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Debbie Newell
Greater Manchester
Eve is our 15 year old Daughter, she was born with PVL quadriplegic cerebral palsy due to a "true knot" that developed in her umbilical cord early on in my pregnancy. She has also In the last 18 months developed severe scoliosis. Despite being in quite alot of pain and discomfort