Hi my name is Rich, my daughter Faith is now 6 years old, 4 years ago she started having 8,9, even 10 + seizures a night
and has now been diagnosed with rasmussen encephalitis, at the end of summer 2019 she will under go a 7 hour surgery procedure called 'hemispherectomy' which means they will shut the right side of her brain down. This will stop the seizures which is good but she will have weakness on her left side lose all movement in her left hand walk with a limp lose eye sight on the left side of each eye. Speech maybe effected. I told Faith 2 years ago that when we have fixed the epilepsy and you are better I will take you to Disney land Paris, but now that's not going to happen for a few years due to the procedure. She's going to have so much trouble getting about talking even eating not to mention lose of eye sight. I'm just trying to reach out to see if I can get help for my fighter my angel my Faith a Disney experience before all of this is taken away from her. Its all she talks about.
To run around Disney land to go on all the rides to be able to hug the characters look back on photos after the surgery and help her remember a magical time one last time while she still can with all of her body still functioning. I aim to take her end of May 2019. Thank you for taking the time to read this. Rich ,Faiths Dad x x x