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Rich O'Connor raised £200 from 9 supporters

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Closed 20/05/2019

0%
£200
raised of £1,000 target by 9 supporters

    Iʼve raised £200 to Faith is 6 years old has been diagnosed with Rasmussen's encephalitis, I'm trying to raise money to take her to Disney land Paris may 2019

    Dudley
    Funded on Monday, 20th May 2019

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    Story

    Hi my name is Rich, my daughter Faith is now 6 years old, 4 years ago she started having 8,9, even 10 + seizures a night
    and has now been diagnosed with rasmussen encephalitis, at the end of summer 2019 she will under go a 7 hour surgery procedure called 'hemispherectomy' which means they will shut the right side of her brain down. This will stop the seizures which is good but she will have weakness on her left side lose all movement in her left hand walk with a limp lose eye sight on the left side of each eye. Speech maybe effected. I told Faith 2 years ago that when we have fixed the epilepsy and you are better I will take you to Disney land Paris, but now that's not going to happen for a few years due to the procedure. She's going to have so much trouble getting about talking even eating not to mention lose of eye sight. I'm just trying to reach out to see if I can get help for my fighter my angel my Faith a Disney experience before all of this is taken away from her. Its all she talks about.
    To run around Disney land to go on all the rides to be able to hug the characters look back on photos after the surgery and help her remember a magical time one last time while she still can with all of her body still functioning. I aim to take her end of May 2019. Thank you for taking the time to read this. Rich ,Faiths Dad x x x

    Updates

    2

    • Rich O'Connor6 years ago
      Rich O'Connor

      Rich O'Connor

      6 years ago

      Just to give everyone a heads up. Faith is still having around 6 seizures a night the new medication lamotrigine has not worked if anything made it worse. We are heading back to Birmingham children's hospital Tue 26th for a brain biopsy to determine if it is rasmussen. Should be out fri sat hopefully. Just wanted to say a huge thank you to the people who have given towards Faith's fundraising. I cant thank you enough. Love you guys x

      Update from the Page owner

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    • Rich O'Connor6 years ago
      Rich O'Connor

      Rich O'Connor

      6 years ago
      Update from the Page owner

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    6 years ago

    Rich O'Connor started crowdfunding

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    Page last updated on: 5/14/2019 08.15

    Supporters

    9

    • Anonymous

      Anonymous

      May 14, 2019

      Hope you all enjoy making happy memories ,with your brave little girl.

      £40.00

    • Marti Meek

      Marti Meek

      Feb 4, 2019

      For beautiful brave faith. 💕 love you lots. X

      £10.00

    • Jayne Kerins

      Jayne Kerins

      Feb 4, 2019

      Hope Faith has an amazing time🙂xx

      £20.00

    • Asa Doolan

      Asa Doolan

      Feb 4, 2019

      All the best mate hope she has an amazing time

      £20.00

    • Alex Autie

      Alex Autie

      Feb 4, 2019

      Hope you all have a great time mate!💕

      £10.00

    • Anonymous

      Anonymous

      Jan 22, 2019

      Good luck with raising the total you need. Best wishes Jane (you don't know me I am Jessie's friends mom).

      £50.00

    • Dee Oconnor Williams

      Dee Oconnor Williams

      Jan 21, 2019

      Sending hugs to you all X

      £20.00

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    Rich O'Connor

    Rich O'Connor

    Dudley

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