After having spent the majority of the last year in hospital Ellie has created these videos to help explain and show what she has been through. Having been previously fit and healthy, it is just crazy how so much has changed so quickly - we honestly can't believe it!

Having attempted many standard treatments throughout these years such as medications to help sickness, drugs to try and speed up the stomach and bowel contractions, pain killers, etc we tried to look at potentially getting the gastric pacemaker for Ellie, however this was unfortunately clearly no longer an option as it only helps the stomach and sadly Ellie's small bowel is affected. Ellie then had to end up with feeding tubes, and after further deterioration ended up in Intestinal failure requiring Home TPN (Intravenous nutrition through a line in the top of her heart). Which is keeping her at home thankfully however we really don't want Ellie to be on this long-term, so our hope is to get her to America to have IVIG (Immunogloblin) therapy - which has been proven to dramatically improve this horrendous condition.

TPN has really improved Ellie's health, allowing her to gain weight back, have energy and look healthy! However serious complications can come along with it including high risk of getting Sepsis, over years it can cause liver damage, blood clots can be common - as ellie already has experienced as well as potentially gut function becoming worse from it not being used! So its certainly scary and we want to do all we can to get her off it. Intestinal failure is the rarest organ failure there is and is extremely hard to manage and treat.

After Ellies recent 3 month hospital admission, she is currently getting back to used to being home and has just learn how to connect and disconnect the TPN by her self which gives bit more independence! She has a few appointments coming up to hopefully talk about the next stages. She then is hoping to be able to go back to school in September to try and get some of her A levels! But as always, we are totally overwhelmed by all the support everyone has and is offering, it certainly helps us in so many ways and gives hope that we will be able to get ellie eating again!!

Any excess money raised will be donated to research into gastroparesis. There are so many other, mainly girls, suffering from gastroparesis and there is an urgent need to raise funds to support this debilitating condition.

We would be beyond grateful for any support you may be able to offer, thankyou.