My story

We made it!

Sky Sports News presenters Julian Waters and Rob Wotton have cycled from St James Park in Exeter to St James' Park in Newcastle in one week. We were greeted by a champagne reception and Dylan, on her 3rd birthday.

Massive thanks to Love Velo, Starley bikes, Malmaison and Hotel Du Vin for their support. Exeter City, Aston Villa, Stoke City and Newcastle Utd welcomed us warmly. Special thanks to Paul Lambert, Rory Delap, Iain Dowie, Lee Briers, fellow Sky Sports News presenters Jim White, Clare Tomlinson, Rachel Wyse and Olivia Godfrey. Thanks to our Sky Sports News colleagues who supported us and skysports.com.

Dylan has Rett Syndrome. She has already been condemned to a life of profound disability and physical pain. She can no longer walk, talk or use her hands. In time, she will lose the ability to eat, drink, even breathe. 

But incredibly and against all the odds she can be saved. Rett Syndrome has been REVERSED in the lab. All we need is money to translate this amazing breakthrough into clinical treatments for Dylan and hundreds of thousands of girls like her.

One such girl is Beth Stevenson - daughter of Andy Stevenson - who cycled with us. Andy is co-founder of Rett Syndrome Research Trust UK - the charity which is driving this research forward. He knows first-hand what it is like to watch your child degenerate in front of your eyes. 

So please help Beth, help Dylan and all the girls living with Rett Syndrome. A cure is within reach - but time is against them.

Your help WILL make a difference. 98.2% of donations will go straight to cutting-edge research. Not a penny is wasted. And, of course, you can add gift aid to make your money go even further.

Thank you for your support. If you have a couple of minutes to spare, please visit www.curefordylan.com for more information on Dylan and Rett Syndrome.

Julian & Rob

My gallery 8

My Team

Team photo
Cure for Dylan

My company

My charity

Rett Syndrome Research Trust UK

Rett Syndrome Research Trust UK

Charity Registration No. 1136809

Rett Syndrome Research Trust UK has one goal: to accelerate treatments and a cure for Rett Syndrome and related MECP2 Disorders. Rett Syndrome has already been reversed in the lab. With your help, we can build a brighter future for our children.

Donations 163

More sponsor from Mersey Valley members incl £100 from the lovely Maria Gleave

Donation by Andy Stevenson on 22/08/12

£190.00

+ £47.50 Gift Aid

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Well done everybody,a monumental effort and terrific achievement.

Donation by Stash (Stanislaw) Gear-Rogalski on 15/08/12

£20.00

+ £5.00 Gift Aid

Money still coming in from the members of Mersey Valley Golf Club

Donation by Andy Stevenson on 13/08/12

£150.00

+ £37.50 Gift Aid

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Well done, fantastic effort

Donation by Shirley Starkey (Andy's Mum in Law) on 11/08/12

£50.00

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a kind donation from someone wishing to remain anonymous - thank you

Donation by Rob Wotton on 06/08/12

£100.00

+ £25.00 Gift Aid

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Great effort. Heard about it from Clare.

Donation by Michelle Farrer on 02/08/12

£20.00

+ £5.00 Gift Aid

Donation by Mark Scott on 02/08/12

£20.00

+ £5.00 Gift Aid

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Congrats guys - brilliant effort and so much money raised :)

Donation by Lynsey Hooper on 01/08/12

£10.00

+ £2.50 Gift Aid

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Donation by Andy Stevenson on 31/07/12

£85.00

+ £21.25 Gift Aid

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Well done to Everyone.

Donation by Mark Watson on 31/07/12

£22.00

+ £5.50 Gift Aid

Sponsor money from MV members

Donation by Andy Stevenson on 26/07/12

£30.00

+ £7.50 Gift Aid

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Many thanks to all those at Morgan Sindall for supporting me and the Team Dylan boys. Carl

Donation by Carl Cookson on 25/07/12

£170.00

+ £42.50 Gift Aid

Donation by Andy Cairns on 23/07/12

£25.00

+ £6.25 Gift Aid

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£200 generously donated by Stoke FC Chief Executive Tony Scholes. Thank you very much.

Donation by Marc Souter on 22/07/12

It was lovely to meet you ,Rob and the team last week end. Colin and I are so grateful for what you did for our darling grand daughter Dylan

Donation by Annick Souter on 21/07/12

£50.00

+ £12.50 Gift Aid

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Well done to Rob and the rest of the saddle-sore Sky team.

Donation by Tony Jones on 20/07/12

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Do we need to install an ice-bath at the club now?

Donation by Epsom Tennis Club on 20/07/12

£107.75

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Incredible achievement for a wonderful cause!

Donation by SGC on 20/07/12

£15.00

+ £3.75 Gift Aid

incredible achievement well done guys

Donation by David Hedges on 20/07/12

£20.00

+ £5.00 Gift Aid

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Well done & best of luck!

Donation by Tim Watts on 19/07/12

£28.00

+ £7.00 Gift Aid

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Well done guys. Great effort.

Donation by Steve Scott on 19/07/12

£50.00

+ £12.50 Gift Aid

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Well done - if only for enduring the weather!

Donation by Huw Watkins on 18/07/12

£20.00

+ £5.00 Gift Aid

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Well done with your donations. From your Linked In connection

Donation by Adam Levene on 17/07/12

£20.00

+ £5.00 Gift Aid

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Brilliant work boys. Sad I couldn't join you though.

Donation by Jack Horry on 17/07/12

£100.00

+ £25.00 Gift Aid

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Only to happy to help, amazing efforrt. Well done Mark Wilson

Donation by Mark Wilson on 17/07/12

£10.00

+ £2.50 Gift Aid

Donation summary

  • * Online donations£7,919.75
  • Offline donations£1,250.00
  • Text donations£35.00
  • Total raised£9,204.75
  • Gift Aid£1,912.50

* Charities pay a small fee for our service. Find out how much it is and what we do for it.