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Ed's page
Event: Rich Yates's fundraising
£4,546.70 raised of £5,000.00 target
30 donations
My Target:
£5,000.00
£4,546.70 raised so far
How to make a donation
Donate online at - www.justgiving.com/cystinosis
By mobile internet Scan this code on your smartphone to go straight to Rich Yates's page.
By text message to donate £10 Text XLIK72 £10
to 70070
My story
Cystinosis is a rare genetic disease that affects approximately 150 people in the UK and about 2000 people worldwide. It causes the amino acid ‘cystine’ to accumulate in the body’s cells. Over time this destroys various organs including the kidneys, liver, muscles, white blood cells, eyes and central nervous system. Very few people have heard of Cystinosis, including many medical professionals. Edward is two and a half years old. He was sick from birth but was only diagnosed with Cystinosis when he was 14 months. Every day he undergoes a gruelling regime of drugs, eye drops and supplements which have many unpleasant side-effects including nausea and vomiting which Edward has to deal with daily. Because Cystinosis is so rare and affects such a small population, research money is scarce to nonexistent. Currently there is no cure. In the past it was rare for people with Cystinosis to survive into adulthood but thanks to charities such as Cystinosis Foundation UK there is real hope. The organisation funds research into the condition, provides support and advice for patients and families, and raises awareness of Cystinosis among the medical community. We plan to raise money through various avenues but please feel free to donate at any time. All of the money raised will go to the Cystinosis Foundation UK. Where possible, please Gift Aid your donation.
My gallery 2
My charity
Cystinosis Foundation UK
Charity Registration No. 1074885
TO PROVIDE SUPPORT TO ANYONE DIAGNOSED WITH CYSTINOSIS, AS WELL AS THEIR FAMILIES AND FRIENDS. TO HIGHLIGHT THE DISORDER TO MEMBERS, THE MEDICAL PROFESSION AND THE WIDER COMMUNITY. TO ASSIST IN THE PROMOTION OF RESEARCH INTO THE TREATMENT OF CYSTINOSIS. TO WORK ALONGSIDE OTHER SIMILAR ORGANISATIONS IN UNDERSTANDING MORE ABOUT METABOLIC DISORDERS IN GENERAL
Donations 30
Fun Day at Puddleducks Nursery, Witham. Thanks to Families, Friends and Staff. Sum generously to be matched by Sarah Pemberton at UBS.
Donation by Ed's Family on 09/06/13
£400.00
Cousin Joan sold some of our home made cards to her friends in Norfolk. She sends her love to Ed and family.
Donation by via Nana Yates on 13/01/13
£25.00
Some of our sock monkeys have gone to live in Japan. Thank you to cousin Keiko for her donation to Ed's page.
Donation by Corinne Yates on 13/01/13
£30.00
Stella Snow sends her love and best wishes to Ed and family
Donation by Stella on 28/12/12
£30.00
Merry Christmas Ed, with love from Pauline and Norman Wright
Donation by via Corinne Yates on 18/12/12
£5.00
Ingrid, a friend of Nana's, sends her best wishes to Ed for a happy Xmas.
Donation by via Corinne Yates on 18/12/12
£10.00
To our friend Edward Donated with love from all your friends at Puddleducks Nursery, Witham.
Donation by Corinne Yates on 11/12/12
£33.00
Happy Christmas, Ted. Love Henry x
Donation by Henry Owen on 11/12/12
Anonymous donation
Donation by Anonymous on 28/06/12
£516.00
The proceeds from Puddleducks Nursery, Witham, Fun Day. With very best wishes from everyone.
Donation by Corinne Yates on 28/06/12
£472.00
A bit more for the pot, cup cake! .. Love Nana and Grandad xxx
Donation by David Yates on 08/05/12
£250.00
+ £62.50 Gift Aid
Hi Rich, 2nd installment from our pamper night @BLC. Good luck for your future fundraising. Our love is sent to you, Emily & Ed xxx
Donation by Elise Hull on 22/01/12
£600.00
Hi, I hope this donation makes a difference! All the best Laura xx
Donation by Laura Boxall on 09/01/12
£260.70
Hope you all had a lovely christmas and new year. Love Zena and family xx
Donation by Zena Marlow on 01/01/12
£20.00
+ £5.00 Gift Aid
Donation by Rik Middleton on 29/12/11
£15.00
+ £3.75 Gift Aid
Donated by Ingrid
Donation by Corinne Yates on 27/12/11
£10.00
Please add this to Ed's fund. x
Donation by Stella Snow on 27/12/11
£20.00
Write your personalised message here With love & best wishes
Donation by Sue and Philip Dew on 27/12/11
£20.00
Merry Christmas.
Donation by Jo & Matt Andrews on 17/12/11
£20.00
+ £5.00 Gift Aid
Merry Christmas from Pauline & Norman Wright. Please add our little bit to Ed's research fund
Donation by Pauline & Norman Wright via Nana on 16/12/11
£5.00
From Steph, George, Rowan and Bryony. All our love for a healthy future. Hope this helps you and your 'friends' xx
Donation by George Narborough on 24/11/11
£90.00
+ £22.50 Gift Aid
Love and best wishes Lou x
Donation by Louise Bonner on 21/11/11
£10.00
+ £2.50 Gift Aid
Halstead Flower Club members would like to send their very best wishes for the future to Edward.
Donation by Julia Jameson on 04/11/11
£175.00
Donated on behalf of Braintree Leisure Centre. Proceeds from our first ever pamper night raised for Cystinosis! :0)
Donation by Elise Hull on 10/10/11
£715.00
Donated on behalf of Puddleducks Nursery, Witham, Essex., the proceeds from the Fun Day for Cystinosis.
Donation by Corinne Yates on 23/09/11
£465.00
Donation summary
- * Online donations£4,546.70
- Offline donations£0.00
- Text donations£0.00
- Total raised£4,546.70
- Gift Aid£186.25
* Charities pay a small fee for our service. Find out how much it is and what we do for it.
