CYSTINOSIS FOUNDATION OF THE UK
Registered charity number 1074885
On JustGiving since Jul 2009
About our charity
TO PROVIDE SUPPORT TO ANYONE DIAGNOSED WITH CYSTINOSIS, AS WELL AS THEIR FAMILIES AND FRIENDS. TO HIGHLIGHT THE DISORDER TO MEMBERS, THE MEDICAL PROFESSION AND THE WIDER COMMUNITY. TO ASSIST IN THE PROMOTION OF RESEARCH INTO THE TREATMENT OF CYSTINOSIS. TO WORK ALONGSIDE OTHER SIMILAR ORGANISATIONS IN UNDERSTANDING MORE ABOUT METABOLIC DISORDERS IN GENERAL
How you can help
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Our top fundraisers
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Alex Hutchison
£9,182.66 raised so far -
Rich Yates
£3,015.70 raised so far -
Martin Kemp
£3,000.00 raised so far -
Scott Clarkson
£2,101.00 raised so far -
christopher conroy
£2,095.00 raised so far -
Justin Spencer
£1,890.00 raised so far