Registered charity number 1074885
On JustGiving since Jul 2009
CYSTINOSIS FOUNDATION OF THE UK
TO PROVIDE SUPPORT TO ANYONE DIAGNOSED WITH CYSTINOSIS, AS WELL AS THEIR FAMILIES AND FRIENDS. TO HIGHLIGHT THE DISORDER TO MEMBERS, THE MEDICAL PROFESSION AND THE WIDER COMMUNITY. TO ASSIST IN THE PROMOTION OF RESEARCH INTO THE TREATMENT OF CYSTINOSIS. TO WORK ALONGSIDE OTHER SIMILAR ORGANISATIONS IN UNDERSTANDING MORE ABOUT METABOLIC DISORDERS IN GENERAL
Find a friend who's fundraising
Our top fundraisers
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Alex Hutchison
$33,928.97 raised so far -
Rich Yates
$6,258.40 raised so far -
Martin Kemp
$4,527.75 raised so far -
Linzi Morrow
$3,456.18 raised so far -
David James Andrews
$2,863.05 raised so far -
Thomas Wright
$2,716.65 raised so far
Messages from other supporters
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In memory of my sister Alison and my brother Michael who were taken from us far too young after brave fights against cystinosis
Donation by Chris Roberts £100.00 + £25.00 Gift Aid
This donation has been made on behalf of Tom Kenning
Donation by Anonymous $100.00
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This donation is in memory of my good friend Donald Miller, one of whose nieces suffers from cystinosis.
Donation by Peter Scourse £100.00 + £25.00 Gift Aid
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Donation by Samantha Chambers £20.00 + £5.00 Gift Aid
