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Provide support to anyone diagnosed with cystinosis, as well their families and friends Highlight the disorder to the medical profession and the wider community Support research into the treatment of cystinosis Work with other organisations to understand more about metabolic disorders
www.cystinosis.org.uk
advice@cystinosis.org.uk
Cystinosis Foundation UK Registered charity number 1074885
"Keep up the good work!"
Anonymous donated
£20.00 + £5.00 Gift Aid
£20.00 + £0.00 Gift Aid
"Happy to support such important work, especially at the festive season."
Stephen and Marianne donated
£50.00 + £12.50 Gift Aid
"A donation on behalf of Maeve's Grandparents and myself. Merry Christmas to all the Cystinosis families x"
Family of Maeve Byrne donated
£150.00 + £37.50 Gift Aid
Will Newman has raised $33,411.53 so far
I'm keeping 'Ellie' in my head for Will Newman because I want to help raise awareness and fund a cure
Nicole Moffat has raised $19,779.28 so far
I'm Friends and family are raising money and awareness for Nicole Moffat because we hope one day there will be a cure found.
Louise Kells has raised $3,339.27 so far
I'm Raising money for Louise Kells because they need funding for research.
Christopher Roberts has raised $2,082.60 so far
I'm Donations in memory of Anne Roberts for Christopher Roberts because this is a charity close to our family's heart
Birch Primary School has raised $1,714.10 so far
I'm An all-day relay event for Birch Primary School because we want to support a fellow pupil
Alison Craig has raised $1,533.40 so far
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