Alex Hutchison

Morven's Page

Fundraising for Cystinosis Foundation UK
raised of £80,000 target
by 711 supporters
Donations cannot currently be made to this page
Alex Hutchison's fundraising, 1 April 2011
Cystinosis Foundation UK

Verified by JustGiving

RCN 1074885
We help and support cystinosis sufferers to increase understanding of cystinosis


Fundraising target for 2016 = £80,000.

Welcome to Morven's Just Giving page. This page has been set up to raise funds for Cystinosis Foundation UK.

Morven was diagnosed with cystinosis at 8 1/2 months old and has been subject to the gruelling medicine regime ever since. Cystinosis is an extremely rare inherited metabolic condition which prevents Morven from processing an amino acid called cystine. The build up of cystine forms crystals which initially impact her kidneys and eyes, and will go on to impact every other organ in her body. The drugs that Morven takes every six hours take steps to reduce her cystine levels and therefore slow her decline but a kidney transplant is inevitable.

By supporting Cystinosis Foundation UK we are looking to assist the charity in meeting its aims which include; supporting cystinotics and their families, raising awareness and promoting research into the treatment of cystinosis.

This is a small charity and as such every penny really does count and will make a real and tangible difference to Morven and other cystinosis sufferers. Medical advances can make massive strides in relatively few years, so we hope that the research into treatments and cures of cystinosis will be able to change the quality of Morven's life sooner rather than later.

We plan to raise money through various avenues on this page but feel free to donate at any time! And don't forget to Gift Aid your donation where possible.

About the charity

Cystinosis Foundation UK

Verified by JustGiving

RCN 1074885
Provide support to anyone diagnosed with cystinosis, as well their families and friends Highlight the disorder to the medical profession and the wider community Support research into the treatment of cystinosis Work with other organisations to understand more about metabolic disorders

Donation summary

Total raised
+ £5,012.66 Gift Aid
Online donations
Offline donations

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