My story

Hello,

My name is Daniel I am 21years old, I was born in ,

My mother has always been there for me and has given me everything she could with in her power. She has been suffering with Fibromyalgia now for about 7 years,

In this time I have found it really hard to understand and deal with the decline in heath which I have seen her go through.

Some days my mother can’t get out of bed, she has no energy to move or even eat properly. She can’t remember a day when she wasn’t in pain,

The kind of person I am, I look to logic to motivate me, I find it really hard to keep her morale up when I can’t offer any logical excuses for what she is going through.

Fibromyalgia isn’t well known and I think that with a bit of help we can try and understand it more and raise some awareness.

About Fibromyalgia

Fibromyalgia is a chronic condition of widespread pain and profound fatigue.  The pain tends to be felt as diffuse aching or burning, often described as head to toe.  It may be worse at some times than others.  It may also change location, usually becoming more severe in parts of the body that are used most.

The fatigues ranges from feeling tired, to the exhaustion of a flu-like illness.  It may come and go and people can suddenly feel drained of all energy – as if someone just “pulled the plug”.

Besides neuropathic pain and fatigue, fibromyalgia symptoms often include –

Unrefreshing sleep – waking up tired and stiff Headaches – ranging from ordinary types to migraine Irritable bowel – alternating diarrhoea and constipation, sometimes accompanied by gas in the abdomen or nausea Cognitive disturbances including lack of concentration, temporary memory impairment and word mix up Clumsiness and dizziness Sensitivity to changes in the weather, noise, bright lights smoke and other environmental factors Allergies

    Once other medical conditions have been ruled out through tests the patient’s history, diagnosis depends on two main symptoms:

    pain in all four quadrants of the body for at least three months together with pain in at least 11 out of 18 tender point sites when they are pressed.

      Fibromyalgia often develops after some sort of trauma that seems to act as a trigger, such as a fall or car accident, a viral infection, childbirth, an operation or an emotional event.

      Me and 2 friends have arranged a trip around on our Motorbike’s

      I am trying to get as much money as possible towards my charity and raise as much awareness as possible.

      My trip will begin on the 10 of September and will end on the 27 in this time I plan to ride through Belgium, Germany, Poland, Slovenia, Austria, Slovakia, Italy, France(Monaco) hopefully Barcelona and through France back to London. We are going to try and do this in two weeks with sleeping bags and tents, maybe the odd night in a hotel to clean.

      My charity offers help people who can’t understand what they are going through and is trying to understand the problem and work towards a way of controlling it.

      Fibromyalgia Association UK is a registered charity that is dedicated to raising awareness about fibromyalgia in the general public, people with fibromyalgia, the medical profession and decision makers.

      We have information booklets for people with fibromyalgia, young people with fibromyalgia and medical professionals available free of charge.

      We publish a monthly magazine and have over 150 local support groups registered with us.

      I am just asking that people can donate some money towards an organization that is trying hard to make peoples life better,

      Thank you

      FMA

      Stourbridge

      DY9 8YL

      Office 0844 826 9022

      Fax 0844 826 9033

      Helpline 0844 887 2444

      http://www.fmauk.org/

      charity@fmauk.org

       

      My charity

      Fibromyalgia Association UK

      Fibromyalgia Association UK

      Charity Registration No. 1042582

      FMA UK aims to achieve major change in the way fibromyalgia sufferers are diagnosed, treated and supported. Our national helpline 0844 887 2444; free information packs for the newly diagnosed; free Medical Packs for UK medical professionals and over 100 support groups and helplines around the UK.

      Donations 17

      Donation by Marc Sharifi on 23/09/10

      £100.00

      + £28.21 Gift Aid

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      Good Luck Dan........

      Donation by Lubna Bashir on 08/09/10

      £10.00

      + £2.82 Gift Aid

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      Have a great journey darling - have fun and take care : - )))))) xxxxxxxxxx

      Donation by Debbie Bartlett on 06/09/10

      £15.00

      + £4.23 Gift Aid

      Donation by Neill Turner on 02/09/10

      £10.00

      + £2.82 Gift Aid

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      Good luck! and if you find alan on your travels please let us know!! ;-) xx

      Donation by Edel Quinn on 02/09/10

      £10.00

      + £2.82 Gift Aid

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      good luck babe - really proud of you xx

      Donation by Sarah Webb on 02/09/10

      £10.00

      + £2.82 Gift Aid

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      Dan well done I saw the wharf good stuff your mum must be so proud of you. Good luck and have fun. See you when you get back. Also happy birthday.

      Donation by Ian Orr on 02/09/10

      £15.00

      + £4.23 Gift Aid

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      Good Luck Daniel Wishing you a safe and pleasant trip. Take Care. Lots of Love to you and Mum from John and Ronnie XX

      Donation by John Harvey and ronnie on 27/08/10

      £20.00

      + £5.64 Gift Aid

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      Good Luck Daniel, Anna Scott - friend of Marc Sharifi.

      Donation by Anna Scott on 23/08/10

      £10.00

      + £2.82 Gift Aid

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      look forward to hearing all about it, come back in one piece.

      Donation by Adolfo Harrison on 20/08/10

      £10.00

      + £2.82 Gift Aid

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      Proud of you Daniel, have fun, hope to see you soon. x

      Donation by Tina, Dean, Ian & Sam on 17/08/10

      £10.00

      + £2.82 Gift Aid

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      Wishing you all the best for a safe and successful journey towards helping this cause. Your mum must be so proud of you :)

      Donation by Katarina, Jamie & Olivia-Grace on 12/08/10

      £30.00

      + £8.46 Gift Aid

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      Hello Daniel, say hi to the magnificent tree alleys from me when you cruise through Germany! Enjoy your trip, looking forward to the pics!

      Donation by Franziska Funke on 10/08/10

      £20.00

      + £5.64 Gift Aid

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      Good Luck my love, but be safe. You have kept me going, more than you know. xxx

      Donation by Carol Jenkins on 10/08/10

      £10.00

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      Good luck in Europe mate, "Get your knee down" Best wishes from Peter, Anna & Honey x (=

      Donation by Anna-Luisa Wilhelm on 09/08/10

      £15.00

      + £4.23 Gift Aid

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      Well done, Dan, good effort!

      Donation by Oksana Salfarlie on 09/08/10

      £10.00

      + £2.82 Gift Aid

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      Donation by Daniel Jenkins on 09/08/10

      £10.00

      + £2.82 Gift Aid

      Donation summary

      • * Online donations£315.00
      • Offline donations£0.00
      • Text donations£0.00
      • Total raised£315.00
      • Gift Aid£86.03

      * Charities pay a small fee for our service. Find out how much it is and what we do for it.