Darren 4 DebRA
Page creator: Darren Cooper
Event: Adidas Dublin Marathon 2008
Event Date: 27th Oct 2008
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About my charity : DebRA DebRA
EB - Epidermolysis Bullosa - is a genetic condition where the skin breaks at the slightest touch, causing painful, open blisters and wounds. EB can mean a life of extreme pain, disability and, at its worst it is fatal in infancy. People with severe EB are likely to contract a fatal skin cancer. DebRA provides specialist EB nursing, funds extensive medical research and provides counselling, welfare, respite and advocacy.
Charity Registration No 1084958
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