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Thanks for visiting our fundraising page. We are raising money for DBA UK, a charity that supports 3yr old Alfie Filer from Bristol.
DBA is a rare blood condition characterised by an inability to produce red blood cells which are necessary to transport oxygen around the body. Patients are usually diagnosed before the age of 2 and require extensive treatment, ranging from regular blood transfusions to high doses of steroids and bone marrow transplants. The condition is extremely rare, affecting approximately 125 people in the UK and only 600-700 world-wide.
DBA UK aims to provide support, research and hope to families by bringing patients together, sharing the latest medical information and funding research into new treatments.
With your help DBA UK will be able to hold a conference of all DBA sufferers in the UK, providing crucial support to them and their families as well as supporting the pursuit of vital research into causes and cures.
You can find out more at http://www.diamondblackfan.org.uk
Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving – they’ll never sell them on or send unwanted emails. Once you donate, they’ll send your money directly to the charity and make sure Gift Aid is reclaimed on every eligible donation by a UK taxpayer. So it’s the most efficient way to donate - We raise more, whilst saving time and cutting costs for the charity.
Thanks again
