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24 hour Walk

Faye Clark is raising money for RETT UK
“faye adams's fundraising”

on 17 July 2011

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Imagine being told your toddler you thought was healthy, but perhaps slow to progress, in fact had a rare and devastating disability that would leave them needing lifelong 24/7 care. Rett syndrome changes lives irrevocably. With your support Rett UK is there from the beginning. #ToKnowHerIsToLoveHer

Story

<div class="content"><span style="color: #ff00ff;">My name is Lily-Ann and I am 2 years old. I have Rett Syndrome. I started changing from a normal baby to a special baby when I was only about 6 months old. It took me a while to get used to my hands not working properly, and mummy and daddy not being able to hear me but I am a very happy girl! I can&rsquo;t walk or tell my hands what to do, but I can kick daddy when he asks me to stop grinding my teeth. I do not talk but I try to sing in my own special way, and I love to giggle. Lots of people tell me that I am beautiful and very happy.</span></div> <div class="content"><br /><span style="color: #ff00ff;">I love going for long walks with Mummy, Daddy and my little brother Lewis. We walk lots and lots, so Mummy and Daddy thought it would be a good idea to walk for a whole day so that we can get lots of money. Daddy says that the money will help other mummies and daddies with special children like me.</span></div> <div class="content"><span style="color: #ff00ff;">On September 17th 2011 my Mummy, Daddy and Uncle Craig will be walking for a whole 24hours&nbsp;to raise money for Rett UK. They are hoping to walk all the way from London to Dover!</span></div> <div class="content"><span style="color: #ff00ff;">Daddy says that the money people give will go to the special researchers so that they can keep trying to find a way for Me and all of the other Special Girls to&nbsp;be&nbsp;like other children. i like this idea so please give lots of pennies.</span></div> <div class="content"><span style="color: #ff00ff;">&nbsp;</span></div> <div class="content"><span style="color: #3366ff;">&nbsp;</span></div> <div class="content"><strong><span style="color: #3366ff;">Well people, it looks like we are going to have to change our route slightly...the only route we can get from google maps is down the A2...not one i fancy walking! we will ensure that the new route still covers 24hours though</span></strong></div>

Donation summary

Total
£1,686.53
+ £175.38 Gift Aid
Online
£1,686.53
Offline
£0.00

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