Why sponsor me?.... I am running the London 10K in fire kit and with a Breathing Set on my back! Why are you doing that you crazy fool! to raise money for NSPKU.. Phenylketonuria (PKU) is a rare inherited condition in which there is a build up of phenylalanine in the body. Phenylalanine is a natural substance; it is a building block of protein. PKU is looked for in all newborns in the United Kingdom by measuring phenylalanine levels in the heel-prick blood test. All babies should have this test as it allows treatment to start early in life. Isabella Murphy was born with this... PKU is a treatable condition. Phenylalanine is found in the protein part of the food we eat. The treatment is a low protein diet. This means that high protein foods such as meat, cheese, poultry, eggs and milk are not permitted. Instead the diet is supplemented with artificial protein which contains no phenylalanine. This diet is very effective at lowering levels of phenylalanine and allows normal growth and development of the child. The information from the NSPKU is a life saver, we could not control her diet without it. It is a charity and the NSPKU receives no government funding. Thank You for your help.. Paul
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