Victoria Maddalena is fundraising for Guillain-Barré Syndrome Support Group

Victoria's page

Royal Parks Foundation Half Marathon 2009

on 11/10/2009

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Raising money for

Guillain-Barré Syndrome Support Group

Charity Registration No. 327314

Since 1985, the GBS Support Group has supported those affected by the neuropathies Guillain-Barré syndrome and CIDP, and their clinical variants. The Charity provides information and support to sufferers and their families and aims to raise awareness of the illnesses amongst both medical professionals and the general public. It raises funds for cutting-edge research into the illnesses.

Page owner

Victoria Maddalena

RSS

Raised: 427%

Target: £300.00
Raised so far: £1,280.00

Donate now

My story

My Dad suffered from Guillain-Barre Syndrome (GBS).

As most people have never heard of nor been affected by this debilitating and extremely distressing disease, the following is a brief introduction. This is an acute disease of the peripheral nervous system in which the nerves in the arms and legs become inflamed and stop working. This causes sudden weakness leading to limb paralysis, and a loss of sensation, sometimes with pain. In some cases the weakness progresses and leads to complete paralysis of the legs, the arms may also be affected. In a quarter of cases the paralysis progresses up the chest and the patient is unable to breathe on his or her own and needs to rely on a ventilator. The throat and face may be affected making swallowing impossible and so the patient needs to be fed by tube up the nose or directly into the stomach. Most patients (80%) make a total recovery but many spend three months or more in hospital and take a year to recover. Modern intensive care makes death from GBS a rare occurrence but is does occur in around 5% of cases, more commonly in the elderly. GBS affects around 1500 people across the UK annually.

Please give generously as this disease is not only distressing for the patient but for those whom they are most close to. To watch someone you love dearly gradually become weaker, eventually become paralysed and completely unable to communicate is heartbreaking beyond description. The GBSSG provides emotional support to patients and family through the difficult times as well as information about the disease, visits by former patients, attempts to educate the public and fosters research into the cause and treatment of the disease.

Thanks for taking the time to visit my JustGiving page.

Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving – they’ll never sell them on or send unwanted emails. Once you donate, they’ll send your money directly to the charity and make sure Gift Aid is reclaimed on every eligible donation by a UK taxpayer. So it’s the most efficient way to donate - I raise more, whilst saving time and cutting costs for the charity.

So please dig deep and donate now.

Thank you, Victoria.

	Donation by Dorothy Megan Stevenson 22/10/09	£10.00
	Great effort - almost inspires me to start running - but not quite....! Donation by Cheryl Summers 13/10/09	£50.00 + £14.10 Gift Aid
	Well done :o) Donation by John Hemmings 13/10/09	£20.00 + £5.64 Gift Aid
	Well done Victoria Donation by Paul 13/10/09	£15.00 + £4.23 Gift Aid
	Well done! Donation by Trish & Tarni 13/10/09	£40.00 + £11.28 Gift Aid
	Very well done Donation by Peter 12/10/09	£50.00 + £14.10 Gift Aid
	Good luck! Donation by Kendra Felisky 12/10/09	£30.00 + £8.46 Gift Aid
	Brenda and Romano send you their best wishes and support you in this most worthy cause. Donation by Romano Maddalena 11/10/09	£20.00 + £5.64 Gift Aid
	Good luck Victoria - hope it doen't rain! Donation by Graeme Rayner 09/10/09	£50.00 + £14.10 Gift Aid
	Good luck. Donation by Rachel Jackson 09/10/09	£50.00 + £14.10 Gift Aid
	Good luck! Donation by J Lymer 09/10/09	£15.00 + £4.23 Gift Aid
	Good luck Victoria and not too much shouting! Lol Tim Jenny Hugo Phoebe xxxx Donation by Tim March 09/10/09	£20.00 + £5.64 Gift Aid
	Good luck on Sunday! Donation by Ewa Burdon 09/10/09	£15.00 + £4.23 Gift Aid
	Best of luck on Sunday! Donation by David Arthur 09/10/09	£30.00 + £8.46 Gift Aid
	Do I still have to come and cheer you on if it's raining?? x. Donation by Nick Maddalena 09/10/09	£50.00 + £14.10 Gift Aid
	Donation by Janet Blaber 09/10/09	£5.00
	What a worthy charity, best wishes to you on Sunday Donation by James Phillips 07/10/09	£50.00
	Good Luck Victoria Tony & Margaret Donation by Tony Stevenson 05/10/09	£50.00 + £14.10 Gift Aid
	Will double the donation if you go round twice!! Best of luck from Alan Sara & gang Donation by Alan Todd 05/10/09	£20.00 + £5.64 Gift Aid
	Good luck. Donation by Brett Goldsworthy 02/10/09	£20.00 + £5.64 Gift Aid
	Good luck, you can do it! Donation by Farshad Zanjani 02/10/09	£20.00
	All the very best and good luck Donation by Dr Jo 30/09/09
	Good luck. Knees are overrated anyway x Donation by Kevin & Alex 29/09/09	£50.00 + £14.10 Gift Aid
	Good luck!! Donation by Ineke 29/09/09	£15.00 + £4.23 Gift Aid
	Donation by Andy Burbridge 29/09/09	£40.00 + £11.28 Gift Aid
	Good Luck! Donation by David Lang 29/09/09	£25.00 + £7.05 Gift Aid

Donate now

* Total raised online:	£860.00
Offline donations:	£420.00
Gift Aid plus supplement:	£218.59

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