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Simon's page
Event: Lands End to John o' Groats
£855.00 raised
15 donations
My Target:
£855.00 raised so far
How to make a donation
Donate online at - www.justgiving.com/endtoend2012-2
By mobile internet Scan this code on your smartphone to go straight to Simon Brock's page.
By text message to donate £10 Text MLUR81 £10
to 70070
My story
Thanks for taking the time to visit my JustGiving page.
My chosen charity is one that supports research into a little understood but surprisingly widespread affliction known as neurofibromatosis or NF1.
My nephew Cameron Fisch, whose picture you see with his family on this page suffers from this debilitating disease for which there is currently no cure. My sister Sarah, and her husband Paul, have been fundraising for neurofibromatosis since 2006 and I will continue now with Sarah's own words.
From our previous fundraisers, many of you are aware of our son Cameron, who is afflicted with Neurofibromatosis-1(NF1). Cameron struggles with normal daily life, such as eating and sleeping, which we all take for granted. We live for the day that he doesn't have to deal with pain, endless fatigue and an ongoing fear of NF progression and all of its effects.
In 2009, Cameron reluctantly had a gastric feeding tube placed to aid his nutrition and growth. Although the nightly management of his feedings are mentally and physically draining, we are very thankful that this supplemental nutrition has helped Cameron gain ~15lbs and a couple of inches in height. Cameron finds it especially gruelling to be attached to a tube each night. He is also on an experimental drug regime and endures frequent blood and other tests. His pain tolerance is already so low and frequent needle sticks are especially hard on him. We are hopeful, that with your help we will be able to find a drug that will help him and thousands of other children and adults. Remember, "the rising tide raises all ships"... A cure for Neurofibromatosis will help all genetic, cancer and neurologic disorders.
Cameron's younger sister, Samantha is supportive and kind and suffers heartache in her own way. Paul, his dad, as a doctor can ironically help many, but feels impotent to help his own son. Sarah, his mother is in constant anguish.
Since we began these fundraisers in 2006, with your help, we have raised over $75,000 for Charities focusing on this and other related conditions. We understand that the current economic times do not nurture fundraising and we are appreciative of anything you have to offer, even if it is just forwarding our message to spread the word.
thank you.
Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving – they’ll never sell them on or send unwanted emails. Once you donate, they’ll send your money directly to the charity and make sure Gift Aid is reclaimed on every eligible donation by a UK taxpayer. So it’s the most efficient way to donate - I raise more, whilst saving time and cutting costs for the charity.
So please dig deep and donate now.
My gallery 2
My charity
The Neuro Foundation
Charity Registration No. 1078790
The Neuro Foundation improves the lives of those affected by Neurofibromatosis, one of the most common neurogenetic conditions in the world Everyday a baby is born in the UK with Neurofibromatosis. There are over 25,000 people in the UK with the condition and, as yet, there is no cure.
Donations 15
Congratulations from a senior cyclist supporter
Donation by Anonymous on 16/06/12
Well done, Dad! You deserve to sleep for a week now.
Donation by Alex & Amy! on 13/06/12
£20.00
+ £5.00 Gift Aid
Well done Simon - what a great achievement, beers on me when I next see you. Happy travels
Donation by Anonymous on 13/06/12
£80.00
+ £20.00 Gift Aid
Donation by Beccy Bayley on 13/06/12
£40.00
+ £10.00 Gift Aid
Well done for a fantastic achievement!!!
Donation by Sophie Godfrey on 11/06/12
£20.00
+ £5.00 Gift Aid
Congratulations Simon, just a few more miles to go!
Donation by Mary and Peter Kilgour on 07/06/12
£50.00
Well done Simon. Guess that you are battling rain as well as the hills
Donation by john tilney on 05/06/12
£200.00
+ £50.00 Gift Aid
Noble fellow. A credit to OHB
Donation by A & M M 10 OHB on 01/06/12
Good luck Simon - we hope you enjoyed Shrews-bury - it sounds like somewhere we would like!
Donation by Marvin & Willow (No. 12) on 30/05/12
£10.00
+ £2.50 Gift Aid
Good luck and wear sunscreen!
Donation by Sebastian Brock on 28/05/12
We'll be keeping track of you from across the pond...hope Michael can guilt some more money from people, love Paul,Sarah Cameron and Samantha
Donation by Denys and Judy Brock on 27/05/12
£50.00
+ £12.50 Gift Aid
Brave man - Good Luck
Donation by Grahame and Sandra on 20/05/12
£50.00
+ £12.50 Gift Aid
Simon, Good Luck with the trip and we will keep up with your progress via the website.
Donation by The Godfrey Family on 18/05/12
£50.00
+ £12.50 Gift Aid
Goodluck and hope you raise lots of lolly!
Donation by Denys and Judy Brock on 17/05/12
£100.00
+ £25.00 Gift Aid
Good Luck-in your state of decline you will certainly need it.
Donation by Anonymous on 16/05/12
£100.00
+ £25.00 Gift Aid
Donation summary
- * Online donations£855.00
- Offline donations£0.00
- Text donations£0.00
- Total raised£855.00
- Gift Aid£201.25
* Charities pay a small fee for our service. Find out how much it is and what we do for it.
