My story

Thank you for visiting our JustGiving page:-

At just 8 weeks old Evie was diagnosed with Diamond Blackfan Anemia (DBA). DBA is a rare blood condition where the bone marrow fails to produce red blood cells, because of this Evie is having blood transfusions every 5 weeks to bring her red blood cell count up to an acceptable level. At just 7 months old Evie has already had 5 blood transfusions. Evie is currently taking a course of steroids which can stimulate a response in the bone marrow and instigate red cell production; if this treatment fails to work she may need to have a bone marrow transplant in the future.

The condition is extremely rare with only 125 known cases in the UK and 700 worldwide. It requires intensive therapy, and has no known cure.

Evie is life dependent on blood that she receives from donors, blood is something we all expect to be there when we need it yet only 4% of people in the UK give blood. If it wasn’t for the generosity of donors Evie wouldn’t be alive today so please do something amazing and give blood.

On 7th July Evie’s daddy is doing a sponsored 1000 hole in one day golf challenge which involves 10 golfers playing 100 holes each in 1 day, they will tee off at 4am and they aim to be finished for 10pm. This is a huge test of golf skills and also endurance.

DBA is only a small charity and could be easily lost amongst so many larger and high profile campaigns. We would really appreciate if you can donate any amount small or large towards a worthwhile and very unsupported charity. Your support is greatly appreciated and even the smallest donation can make a big difference.

Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving – they’ll never sell them on or send unwanted emails. Once you donate, they’ll send your money directly to the charity and make sure Gift Aid is reclaimed on every eligible donation by a UK taxpayer. So it’s the most efficient way to donate - We raise more, whilst saving time and cutting costs for the charity.

So please chip in for charity!

My charity

Diamond Blackfan Anaemia Support Group Uk

Diamond Blackfan Anaemia Support Group Uk

Charity Registration No. 1083179

with only 125 known cases in the UK it is an information lifeline for parents because doctors rarely know enough about the condition. it organises annual conferences for families to meet.

Donations 37

windmill2.png

Sponsorship money from golf day

Donation by Neil Aitchison on 30/09/12

£250.00

+ £62.50 Gift Aid

Superman.png

Donation by Anonymous on 25/08/12

Well done all the golfers. Giving blood will be a doddle compared to that Thank you to everyone who supported Michael and Stuart

Donation by Deborah Dawson on 05/08/12

£113.00

+ £28.25 Gift Aid

Jumping.png

Well done to all!

Donation by Lazy grace on 09/07/12

£250.00

+ £62.50 Gift Aid

smileys.png

Donation by Laura Montandon on 08/07/12

£5.00

smiley.png

Well done to all the golfers and everyone who organised the day.

Donation by Graham Brown on 08/07/12

£25.00

+ £6.25 Gift Aid

Donation by bob summerson on 07/07/12

£10.00

+ £2.50 Gift Aid

Donation by Anonymous on 07/07/12

£25.00

+ £6.25 Gift Aid

Here's the money raised for DBA UK from the Charity Cake Feast I held at work. Passing on all the well wishes from work to gorgeous baby Evie.

Donation by Auntie Lizzie xxx on 07/07/12

£170.00

+ £42.50 Gift Aid

smileys.png

Good luck with the golf challenge Richie. Hope you, Becks and Evie all enjoy the day and raise lots of money for DBA UK to help gorgeous Evie.

Donation by Lizzie xx and Rob x on 07/07/12

£30.00

+ £7.50 Gift Aid

Jumping.png

Donation by KATRINA MCDONAUGH on 07/07/12

£20.00

+ £5.00 Gift Aid

Jumping.png

Good Luck.x

Donation by Emma Dare on 06/07/12

£10.00

+ £2.50 Gift Aid

Superman.png

Good luck Jonny and everyone else involved!!! X

Donation by Bea P on 06/07/12

£10.00

+ £2.50 Gift Aid

Donation by Anonymous on 06/07/12

£5.00

+ £1.25 Gift Aid

Jumping.png

Good luck to everyone involved your raising money for a great cause.

Donation by JD on 04/07/12

£5.00

+ £1.25 Gift Aid

trophy.png

100 hole in ones Jonny? Best of luck for a great cause.xx

Donation by annalisa ludwinski on 03/07/12

£5.00

+ £1.25 Gift Aid

present.png

Good luck to all on the golf challenge, and God Bless little Evie x

Donation by Andrew Paterson on 29/06/12

£10.00

+ £2.50 Gift Aid

thumbsUp.png

may all your shots be good ones Jonny! good luck, F and G

Donation by Frances Prokofiev on 27/06/12

ThumbsUp.png

Good luck Jonny, just make sure you take enough golf balls...

Donation by Gary Evans on 26/06/12

£20.00

+ £5.00 Gift Aid

Inmem.png

Good luck Jonny!

Donation by Rachel Humphreys on 25/06/12

£10.00

+ £2.50 Gift Aid

smileys.png

Good luck mate

Donation by Paul Housden on 22/06/12

£20.00

+ £5.00 Gift Aid

Inmem.png

Good Luck

Donation by Joanna Kemp on 22/06/12

£5.00

+ £1.25 Gift Aid

Trophy.png

Good luck all involved.

Donation by David Brough on 21/06/12

£20.00

+ £5.00 Gift Aid

thumbsUp.png

As one of the worst golfers i've ever seen this is going to be a long day for you Mr Luke

Donation by Chris Lloyd on 21/06/12

£20.00

+ £5.00 Gift Aid

Trumpet.png

Mr Luke, You're an excellent driver. Good luck.

Donation by Terence Barber on 28/05/12

£20.00

+ £5.00 Gift Aid

Donation summary

  • * Online donations£1,593.00
  • Offline donations£0.00
  • Text donations£0.00
  • Total raised£1,593.00
  • Gift Aid£394.50

* Charities pay a small fee for our service. Find out how much it is and what we do for it.