<p>Thank you for visiting our JustGiving page:-<br> <br>At just 8 weeks old Evie was diagnosed with Diamond Blackfan Anemia (DBA). DBA is a rare blood condition where the bone marrow fails to produce red blood cells, because of this Evie is having blood transfusions every 5 weeks to bring her red blood cell count up to an acceptable level. At just 7 months old Evie has already had 5 blood transfusions. Evie is currently taking a course of steroids which can stimulate a response in the bone marrow and instigate red cell production; if this treatment fails to work she may need to have a bone marrow transplant in the future.</p> <p>The condition is extremely rare with only 125 known cases in the UK and 700 worldwide. It requires intensive therapy, and has no known cure.<br> <br>Evie is life dependent on blood that she receives from donors, blood is something we all expect to be there when we need it yet only 4% of people in the UK give blood. If it wasn&rsquo;t for the generosity of donors Evie wouldn&rsquo;t be alive today so please do something amazing and give blood.<br> <br>On 7th July Evie&rsquo;s daddy is doing a sponsored 1000 hole in one day golf challenge which involves 10 golfers playing 100 holes each in 1 day, they will tee off at 4am and they aim to be finished for 10pm. This is a huge test of golf skills and also endurance.</p> <p>DBA is only a small charity and could be easily lost amongst so many larger and high profile campaigns. We would really appreciate if you can donate any amount small or large towards a worthwhile and very unsupported charity. Your support is greatly appreciated and even the smallest donation can make a big difference.<br> <br>Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving &ndash; they&rsquo;ll never sell them on or send unwanted emails. Once you donate, they&rsquo;ll send your money directly to the charity and make sure Gift Aid is reclaimed on every eligible donation by a UK taxpayer. So it&rsquo;s the most efficient way to donate - We raise more, whilst saving time and cutting costs for the charity.<br> <br>So please chip in for charity!</p>