Thank you for visiting my fundraising page, please give generously.
The CF Trust charity raises awareness of CF, funds research programmes and provides support programmes for sufferers of the condition. The CF gene therapy programme is now at a very advanced and optimistic stage, with clinical trials on young CF adults having started this year. Being a CF patient, I have registered as a candidate for the Gene Therapy Run-in Study in the hope of furthering the research. I'm taking part in our annual 28 mile cycle run to raise funds for the Cystic Fibrosis Trust. I have completed this cycle run every year since I was 7 excluding the year I had broken my ankle. Each year I try to beat my previous year's target total and time taken to complete the cycle route. My record time is 3hrs20mins and my record total is £755. With your help I hope to reach my new target this year. This year is extra special for me as the cycle run is on the same day as my 18th birthday! If you are interested in taking part in the cycle run, details can be found at: www.cystisfibrosisglasgow.org.uk Please give generously!!
Some Facts About Cystic Fibrosis.
Cystic Fibrosis (CF) is the UK's most common life-threatening inherited disease. Cystic Fibrosis affects over 7,500 people in the UK. Over two million people in the UK carry the faulty gene that causes Cystic Fibrosis - around 1 in 25 of the population. If two carriers have a child, the baby has a one in four chance of having Cystic Fibrosis. Cystic Fibrosis affects the internal organs, especially the lungs and digestive system, by clogging them with thick sticky mucus. This makes it hard to breathe and digest food. Each week, five babies are born with Cystic Fibrosis. Each week, three people lose their fight against Cystic Fibrosis. Average life expectancy is around 31 years, although improvements in treatments mean a baby born today could expect to live for longer. Further information is available from www.cftrust.org . |
