On September 11th I'm running in the Adidas 5K Women's Challenge in honour of my daughter, Amber Dine.

Amber was born healthy and around the age of two began to develop the symptoms of Rett Syndrome. In the years that followed, Amber lost her speech, the use of her hands and slowly over a number of years, she has lost the ability to walk. Now at fifteen, she can barely stand.

I would love to tell you that this is a diagnosis which improves over time, that after the initial blows, things start to improve but the truth is that this condition doesn't get any easier to live with. As well as being locked into a body that won't work, Amber now has Parkinsonian tremours and intractable seizures. She has trouble with the most basic things, like eating and breathing and at this point in time, there is no treatment which can help her.

But it isn't all bad news: Rett Syndrome has already been reversed in lab models of even late-stage disease.

That's why in 2010, I co-founded the Rett Syndrome Research Trust UK. Our organisation focuses entirely on speeding the time it takes to translate these amazing research developments into take-home treatments and cures for our children living with Rett Syndrome today.

We do this by intensively funding the research projects focused on our solution. Our overheads are super low, which has so far enabled us to deliver 98p in every £1 to the research that will give Amber a better future.

Thank you.

To read more about why RSRT UK are a great charity to support, please visit: http://www.reverserett.org.uk/why-donate