Justgiving - ME!!! Doing the marathon!!!!!

ME!!! Doing the marathon!!!!!

Page creator: Leah shaw

Event: Flora London Marathon 2008

Event Date: 13th Apr 2008

Team Members: Leah Shaw

Hollie

About our charity : DebRA

DebRA
EB - Epidermolysis Bullosa - is a genetic condition where the skin breaks at the slightest touch, causing painful, open blisters and wounds. EB can mean a life of extreme pain, disability and, at its worst it is fatal in infancy. People with severe EB are likely to contract a fatal skin cancer. DebRA provides specialist EB nursing, funds extensive medical research and provides counselling, welfare, respite and advocacy.
Charity Registration No 1084958

Fundraising target:	£10,000.00
Our donations to date :	£ 7,709.20

days left to donate!

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Our personal message:

Hi Everyone,

Thanks so much for looking at my mummy's site.

Well Daddy did it in 2006, and now its my mummy's turn! ...yep she's running the London Marathon! can you belive it?

My name is Hollie, im 3 years old, and have got epidermolysis bullosa, or EB for short. Basiclly the glue that holds my skin on to my body is missing, so if I get friction on my skin it will blister or if i get knocked my skin can sometimes come straight off which hurts a lot. Mum and Dad have to put dressings on my skin to cover blisters that have to be popped, and i also have them on for protection.

I love to run around and jump on my trampoline, but all i get is constant nagging from Mum, Dad and my carers' at nursery to slow down so i dont hurt myself. My friends at nursery also have to be really careful around me because they can hurt me if they brush past me. I would love to one day run around with my friends and play fight with my baby brother without getting hurt.

EB dosent just effect my body, it also effects me when I eat and brush my teeth, when I eat it can cause blisters on my gums, tongue and down my throat, so i have to stay away from some yummy treats as i have to eat soft food instead. I had to have 12 teeth taken out the other day due to my condition, but i did get lots of lovely money from the tooth fairy that night!!. only thing is now it's now going to be even harder for me to eat with my fragile gums.

I don't know how this condtion will effect me when I get older, we dont know if i'll have to have a tube in my tummy so i can eat, or wether or not i'll need a wheelchair for when my feet hurt.

My Mum and Dad went to the DebRA AGM meeting not so long ago, and all the very clever doctors told us about a man in Italy, he had some geneticaly modified skin grafts put on his hands. a year has now past and his skin is normal! he does not blister and its as strong as your skin!

so if you sponcer my mummy you know its going to a great cause thats nearly got the cure! Plus back in January my mum couldn't run for more that 30 seconds, and if you saw her now you'd be gobsmaked! it's worth giving money just to watch her run 26.2 miles! ha ha

Thank you soooooooo much for sponcering, when you donate the money goes straight to Debra

Every £5 will fund 15 minutes of research.

£20 will bring hope of effective treatment one hour closer.

£75 will provide an EB Health Care Specialist for a day.

£150 funds a researcher bringing the reality of a cure one day nearer

Thank you for visiting my fundraising page. Please dig deep and sponsor me online.

Donating through this site is simple, fast and totally secure. It is also the most efficient way to sponsor me: DebRA will receive your money faster and, if you are a UK taxpayer, an extra 28% in tax will be added to your gift at no cost to you.

So please sponsor me now!

Many thanks for your support.

Our online fundraisers to date:

Page 1 of 2 Latest << | < | > | >> Earliest

Display Name	Date	Amount	Tax Bonus	Comment
Karen Binns	11/05/2008	£10.00	£2.82	Well Done!! What an achievement x x :-)
anonymous	27/04/2008	£100.00	£28.21	congratulations!
Toby Young	27/04/2008	£20.00	£5.64	Congratulations, well done!
Philippa Casinelli	25/04/2008	£20.00	£5.64	Congratulations! fantastic achievement! x
Anonymous	24/04/2008	£160.00	£45.13	well done, you deserve to hit the target!
Claire M. Bernard	19/04/2008	£20.00	£5.64	Well done Leah! I remember the mixed emotions of completing a marathon only too well! x
Julie Bicknell	19/04/2008	£10.00	£2.82	Well done - a massive achievement!
Nik, Angela & the boys	18/04/2008	£10.00	n/a	Well done!!
Amanda	17/04/2008	£10.00	£2.82	Well Done !!
Jade Lincoln	16/04/2008	£10.00	£2.82	Well done to both of you xxx
Gary Daniel	16/04/2008	£20.00	£5.64	Well done!
Sam Harrison	16/04/2008	£10.00	£2.82	Well done both of you, inspiration to us all!! x
Sarah Goodall	16/04/2008	£5.00	£1.41	Well done!
James Taylor	16/04/2008	£26.00	£7.33	Well done to the both of you. Hope all is well
Anonymous	16/04/2008	£20.00	£5.64	I take it you didnt need the crutches!
Liz	14/04/2008	£100.00	£28.21	Hollie was looking for you un the telly and knew you were doing it for her. We are both very proud of you. Love Liz.
wendy	14/04/2008	£5.00	n/a
Mavis	14/04/2008	£10.00	n/a	well done!
Adam Shaw	14/04/2008	£500.00	£141.03	Really proud of you, it was fantastic to see your determination all around the course. Hollie shows
Mick Turner	14/04/2008	£10.00	£2.82	Well done Leah, hope you're not aching too bad today!
Lucy Weaver	14/04/2008	£10.00	£2.82	Well done Leah!!!Hope you had a fab day!:)
Simon, Tracy & family	14/04/2008	£20.00	£5.64	Well done
Elaine(mum)	13/04/2008	£150.00	£42.31	we are very proud of you
Wadjet	13/04/2008	£20.00	n/a	well done
Rachel,Ella and Isaac Noonan	12/04/2008	£10.00	£2.82	Your Mummy is very brave doing this race but we think you are braver. x
Jackie & Emma	12/04/2008	£10.00	£2.82	Good luck Leah! xxxx
benn kerr	12/04/2008	£20.00	n/a	good luck dear, and please beat adams time!
Andra, Barbara & Malcolm at Nursery	12/04/2008	£100.00	£28.21	Good Luck!
Raj Kohli	10/04/2008	£20.00	£5.64	Good luck mate!! need a sub 3hr time...
Liam Boss Man Barratts	10/04/2008	£20.00	£5.64	For a great cause but still want a pic of your wife in her lycra for the cabin. Good Luck
Briony	10/04/2008	£20.00	£5.64	Good luck! Hope you reach your target of £10k. Looking forward to seeing the pictures.
Christna Wilkinson	10/04/2008	£5.00	£1.41	You're amazing! Go for it!
Ash & Billie	10/04/2008	£20.00	£5.64	All the best you two, we'll be rooting for you. Hope we get to see some good pictures of beetroot heads at the end.
Joanne	09/04/2008	£10.00	£2.82	Good Luck....!
Tracey Harris	09/04/2008	£5.00	n/a	good luck Leah & Adam will be thinking of you all love Tracey & Joe xx
Samuel from nursery	09/04/2008	£10.00	£2.82	Good Luck with the run and your fundraising
Becki McSharry	08/04/2008	£10.00	£2.82	Good luck Leah!! Your braver than me!! xx
Sarah Blaymire	08/04/2008	£5.00	£1.41	Good luck Leah!
Valerie & Lily	07/04/2008	£5.00	£1.41	Good luck Leah!
suzanne & Paul	06/04/2008	£10.00	n/a	good luck Leah x
Annette Ashley	06/04/2008	£10.00	£2.82	Good luck Leah!! xxxx
Jane, Chris & Abi Sykes	06/04/2008	£26.20	£7.39	Good Luck Leah. We will be thinking of you all on the day! xx
Helen	06/04/2008	£20.00	£5.64	Hi Leah! Goodluck with the marathon and fundraising. Lots of love to you all. Love Helen and family.xxx.
Jayne Smith & Everyone at Marsh Dental	05/04/2008	£30.00	£8.46	All the very best Leah. Love to Hollie x x x
Amii	04/04/2008	£10.00	£2.82	You go girl. Good Luck. Love to Hollie x
Em , Tim and Tahlia	04/04/2008	£30.00	£8.46	we're sooooooooooo proud of you!
Rachel Smith	04/04/2008	£10.00	£2.82	Good luck Leah, I will be watching out for you on the TV. You should be proud of yourself! x
Emily Duggan	03/04/2008	£10.00	£2.82	Good luck hunni hope the injury holds out all the best xxx
ben bridgen	03/04/2008	£10.00	£2.82	good luck and all the best honey
vicky	03/04/2008	£10.00	£2.82	Good luck chick xx xx
cat, tilly, eliza and zac	03/04/2008	£10.00	£2.82	ruuuuuuuuuuuuuun! :P
Natalie Ungurian	03/04/2008	£20.00	£5.64	Go girl! x
fiona sunter	02/04/2008	£30.00	n/a	good luck!
David Scott	01/04/2008	£20.00	£5.64	DO IT!!!
Anonymous	27/03/2008	£5.00	£1.41	good luck!
Hedley & Trish Batchelor	23/03/2008	£25.00	£7.05	Good Luck to Leah and her feet!
Hayley Beasley	21/03/2008	£5.00	£1.41
Barks	19/03/2008	£25.00	£7.05	Good Luck Leah. Adams a Wus !
Jobe (Ellie T's friend)	19/03/2008	£5.00	£1.41	Good luck x
Claire Foster	19/03/2008	£5.00	£1.41	Good Luck Leah.
Nic and Millie	18/03/2008	£5.00	£1.41	Leah - you are a true inspiration - Good Luck xxx
Louise Bell and her mum	14/03/2008	£25.00	£7.05	Good luck Leah! Hope you don't need the crutches!
Kate	11/03/2008	£5.00	£1.41	Good luck!
Lisa Walker	07/03/2008	£20.00	£5.64	All the best Leah, Hollie is a wee beauty.x
Joanne Dewick	05/03/2008	£25.00	£7.05	Good Luck Matey!!!
Simon, Amanda and Tyler	29/02/2008	£25.00	£7.05	Good luck Leah! xxx
Adam Shaw (Bert)	29/02/2008	£1,812.50	£511.22	Ha ha liverpool half marathon this sunday!!!
Jan Patton	28/02/2008	£20.00	£5.64	You will do it Leah!!! Go girl.
Richard Adamson	28/02/2008	£150.00	£42.31	All the best Leah. Well Done.
Ethan & Aaron	28/02/2008	£10.00	£2.82	Go go go !!! Good luck Leah.
Martin Taylor	28/02/2008	£100.00	£28.21	Keep them knees up!
Shillito family	27/02/2008	£40.00	£11.28	Hope it goes really well on the day xx
Luke (Hollie's friend)	27/02/2008	£10.00	£2.82	Bet your mummy is really fast!
James Winstanley	26/02/2008	£10.00	£2.82	Good luck!
Teresa Eastwood	22/02/2008	£20.00	£5.64	Good Luck!!
Phil & Aileen Haigh	15/02/2008	£50.00	£14.10	Brave girls
andrew kitson	12/02/2008	£20.00	£5.64	good luck
Vicky Egan	11/02/2008	£50.00	£14.10	Good luck Leah.
Linda Toft	06/02/2008	£10.00	£2.82	Good Luck Leah! You can do it!!
Stacey Damo and Brida	03/02/2008	£15.00	£4.23	Run Leah Run! See you at the finish line huny! eeek! Hollie will be so proud! xx
The Atkinsons	30/01/2008	£5.00	£1.41	Good Luck
Cat, Tilly, Eliza and Zac	30/01/2008	£5.00	£1.41	Good luck in the running lark..rather you than me!!!
Brian Conroy stainland lions.	30/01/2008	£20.00	£5.64	good luck and god bless.
The Ortons	28/01/2008	£10.00	£2.82	Go Girl - hope the sun shines on you :o))
Abigail Dyson	22/01/2008	£5.00	£1.41	Good luck!!!
Peter Freeman	22/01/2008	£20.00	£5.64	I'm glad we didn't put you off at Reading, look forward to meeting you all again in London
Barbara Wesson	20/01/2008	£60.00	£16.92	Good luck with your very worthy cause.
Auntie Elaine & Chris	20/01/2008	£50.00	£14.10	This is the big one good luck!
Ryan O'Hara	15/01/2008	£10.00	£2.82	Best of luck!
Tania Morton	14/01/2008	£5.00	£1.41	Good luck Leah, see you at the start x x x
Steph & Steve, Stacey & Damo	12/01/2008	£10.00	£2.82	We'll see you at the start and the finish Leah, Good Luck!!
Mrsm4	08/01/2008	£10.00	£2.82	Go for it Leah, Good luck xx
Anonymous	08/01/2008	£50.00	£14.10
Heather	08/01/2008	£20.00	n/a	Sending good luck vibes from oz. Go Girl!
Suzanne	07/01/2008	£20.00	£5.64	Good luck honey! Love Suzanne, Alanna and Alfie
Natalie Mason	07/01/2008	£5.00	£1.41	Good luck Leah, I'm sure you will do it.
The Ortons	02/10/2007	£10.00	£2.82	Good Luck Leah! You can do it!!!!!!!!!!!!!! Huff puff, huff puff!!!!
Tanya (Julie's friend!)	02/10/2007	£5.00	£1.41	Have read your web page & am really moved so here's a little something to help spur you on!!
laura jowett	14/09/2007	£10.00	£2.82	Run!!!!!!
Amanda McLean	28/08/2007	£20.00	£5.64	Go Leah - what you're doing is amazing!