Story

Thanks for taking the time to visit my JustGiving page. And please note that I'm not cycling to Geneva, as I was the only person who enrolled on it! Instead I am running in the Reading Half Marathon on Sunday, 21st March 2010.

On October 4th 2008 I suffered my first seizure and spent a week in hospital. I have since been diagnosed as having a cavernoma in the front left lobe of my brain. This is a fairly rare condition. The cavernoma is a blackberry-like formation which seeps blood into the surrounding tissue. As this is gradually absorbed it leaves traces of iron, known as haemosiderin, which cause the seizures.

You can find more information about cavernomas at: http://en.wikipedia.org/wiki/Cavernous_hemangioma. It helps if more people know about the condition.

I suffered a 28-hour memory loss with my first episode. I had a second seizure on February 6th 2008 which led to a week in UCH London and a memory of loss of about 8 hours. I have had much support through my experiences from the Cavernoma Alliance which has given me a great deal of information about my condition, and organises a wonderful free annual conferences and local support groups throughout the country. I should like to give some help back in recognition of this.

Luckily I am pretty fit and cycle and run a lot, which has helped me. As I am no longer allowed to drive cycling has allowed me to continue my work for the WEA, covering long distances throughout the county... Running has become my addiction. My consultant encourages me to keep fit and slim, and I'm not arguing with him!

So please dig deep and donate now.

Raising money for

Cavernoma Alliance UK

Cavernoma Alliance UK

Charity Registration No. 1114145

Cavernoma Alliance UK aims to provide advice and support for those with cavernous angioma through its organisational skills and by providing a service which makes the general public aware of cavernous angioma.

Donations 18

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Anil Lee rules ok

Donation by Anil Lee on 06/04/10

£5.00

+ £1.41 Gift Aid

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In memory of the Bideford Witches

Donation by Heavitree LHS on 26/03/10

£50.00

+ £14.10 Gift Aid

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A big thank you to Rose Cronin and Barbara Stroud of the Cavernoma Aliance

Donation by Frank Gent on 22/03/10

£20.00

+ £5.64 Gift Aid

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Good luck, Frank!

Donation by John Draisey on 20/03/10

£10.00

+ £2.82 Gift Aid

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Have a great day

Donation by Deborah Hastings on 19/03/10

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Good luck, Frank!

Donation by Hermione and John on 18/03/10

£30.00

+ £8.46 Gift Aid

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Good Luck

Donation by Gillian Keniston-Goble on 18/03/10

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For a great guy - Keep Smiling!

Donation by Loretta Bellman on 17/03/10

£25.00

+ £7.05 Gift Aid

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Donation by R Crisp on 16/03/10

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Good old mum and dad

Donation by Frank Gent on 16/03/10

£50.00

+ £14.10 Gift Aid

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In memory of Bert Perlmutter

Donation by Frank Gent on 16/03/10

£70.00

+ £19.74 Gift Aid

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oooh Lycra! Have a great run!

Donation by Katherine Weston on 05/03/10

£5.00

+ £1.41 Gift Aid

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Donation by Chris Cornford on 22/02/10

£50.00

+ £14.10 Gift Aid

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Best of luck!!!

Donation by sara nanasbaum on 18/02/10

£20.00

+ £5.64 Gift Aid

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Lipreading rules!

Donation by Frank Gent on 22/01/10

£20.00

+ £5.64 Gift Aid

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Good Luck!!

Donation by Catherine Cartwright on 03/12/09

£15.00

+ £4.23 Gift Aid

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Donation by anonymous on 17/11/09

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Good for you Frank...nice to see you are getting these rides in whilst you are young !!

Donation by kevin barnes on 16/11/09

£10.00

+ £2.82 Gift Aid

Donation summary

  • * Online donations£415.00
  • Offline donations£0.00
  • Text donations£0.00
  • Total raised£415.00
  • Gift Aid£114.23

* Charities pay a small fee for our service. Find out how much it is and what we do for it.