A close family member found out that there is Myotonic Dystrophy in her family when her granddaughter Lily-Rose Westerman was born with the congenital form two and a half years ago. We desperately need to raise awareness and much needed funds for research into a treatment or cure as at present there is no cure. That is why I will be leaping from a plane.....Please donate generously.

Muscular Dystrophy UK is the charity for 70,000 people living with muscle-wasting conditions. They are making a difference today, providing vital information and support to help people live as independently as possible. They are making a difference for tomorrow, accelerating progress in research and driving the campaign for access to emerging treatments.